Home-based rehabilitation experience of children with congenital muscular torticollis: a qualitative study
Abstract Background Early physical therapy holds significant importance for the rehabilitation of children with congenital muscular torticollis. Comprehensive physical therapy combined with home-based care intervention has been developed as well; However, certain issues persist in practical applicat...
Saved in:
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2025-07-01
|
| Series: | BMC Nursing |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12912-025-03360-x |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1849335066925203456 |
|---|---|
| author | Youqiong Lu Lin Mo Gefang Li Dan Xiao Chen Mu |
| author_facet | Youqiong Lu Lin Mo Gefang Li Dan Xiao Chen Mu |
| author_sort | Youqiong Lu |
| collection | DOAJ |
| description | Abstract Background Early physical therapy holds significant importance for the rehabilitation of children with congenital muscular torticollis. Comprehensive physical therapy combined with home-based care intervention has been developed as well; However, certain issues persist in practical application, such as poor caregiver compliance, inability to adhere to rehabilitation in the long term, lack of disease - related knowledge, etc. Thus, this study aims to offer a reference for the formulation of a home-based rehabilitation program for this population by comprehending the actual experience and requirements of home-based rehabilitation for children with congenital muscular torticollis. Methods Through purposive sampling, a descriptive phenomenological study was conducted on family members of children with congenital muscular torticollis from two hospitals in Chongqing Province, China. Semi-structured in-depth interviews were carried out either face-to-face or via video conferencing in the hospital conference room and were evaluated using Colaizzi’s 7-step phenomenological analysis. Results A total of 11 primary caregivers of children with congenital muscular torticollis were interviewed, and 9 categories were derived from this study. There were 3 themes for the home-based rehabilitation of children with congenital muscular torticollis: (1) Perceptions and attitudes, (2) Dilemmas, and (3) Trust and need. Conclusion The findings indicate that during the home-based rehabilitation process, the primary caregivers of children with congenital muscular torticollis have diverse needs and difficulties. The respondents expressed their hope that medical workers could enhance communication with them, provide professional support, and urge them to adhere to training. Among the numerous needs, the teaching of professional knowledge and skills for home-based rehabilitation training is the most desired. Clinical trial number Not applicable. |
| format | Article |
| id | doaj-art-1f67527db0cb4d7085d6d9dd2386cd36 |
| institution | Kabale University |
| issn | 1472-6955 |
| language | English |
| publishDate | 2025-07-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Nursing |
| spelling | doaj-art-1f67527db0cb4d7085d6d9dd2386cd362025-08-20T03:45:24ZengBMCBMC Nursing1472-69552025-07-0124111210.1186/s12912-025-03360-xHome-based rehabilitation experience of children with congenital muscular torticollis: a qualitative studyYouqiong Lu0Lin Mo1Gefang Li2Dan Xiao3Chen Mu4Department of Orthopedics Children’s Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defects and Reconstruction, Children’s Hospital of Chongqing Medical UniversityOutpatient Department Children’s Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defects and Reconstruction, Children’s Hospital of Chongqing Medical UniversityDepartment of Orthopedics Children’s Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defects and Reconstruction, Children’s Hospital of Chongqing Medical UniversityDepartment of Orthopedics Children’s Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defects and Reconstruction, Children’s Hospital of Chongqing Medical UniversityDepartment of Orthopedics Children’s Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defects and Reconstruction, Children’s Hospital of Chongqing Medical UniversityAbstract Background Early physical therapy holds significant importance for the rehabilitation of children with congenital muscular torticollis. Comprehensive physical therapy combined with home-based care intervention has been developed as well; However, certain issues persist in practical application, such as poor caregiver compliance, inability to adhere to rehabilitation in the long term, lack of disease - related knowledge, etc. Thus, this study aims to offer a reference for the formulation of a home-based rehabilitation program for this population by comprehending the actual experience and requirements of home-based rehabilitation for children with congenital muscular torticollis. Methods Through purposive sampling, a descriptive phenomenological study was conducted on family members of children with congenital muscular torticollis from two hospitals in Chongqing Province, China. Semi-structured in-depth interviews were carried out either face-to-face or via video conferencing in the hospital conference room and were evaluated using Colaizzi’s 7-step phenomenological analysis. Results A total of 11 primary caregivers of children with congenital muscular torticollis were interviewed, and 9 categories were derived from this study. There were 3 themes for the home-based rehabilitation of children with congenital muscular torticollis: (1) Perceptions and attitudes, (2) Dilemmas, and (3) Trust and need. Conclusion The findings indicate that during the home-based rehabilitation process, the primary caregivers of children with congenital muscular torticollis have diverse needs and difficulties. The respondents expressed their hope that medical workers could enhance communication with them, provide professional support, and urge them to adhere to training. Among the numerous needs, the teaching of professional knowledge and skills for home-based rehabilitation training is the most desired. Clinical trial number Not applicable.https://doi.org/10.1186/s12912-025-03360-xCongenital muscular torticollisHome-based rehabilitation children“5E” rehabilitation modelQualitative research |
| spellingShingle | Youqiong Lu Lin Mo Gefang Li Dan Xiao Chen Mu Home-based rehabilitation experience of children with congenital muscular torticollis: a qualitative study BMC Nursing Congenital muscular torticollis Home-based rehabilitation children “5E” rehabilitation model Qualitative research |
| title | Home-based rehabilitation experience of children with congenital muscular torticollis: a qualitative study |
| title_full | Home-based rehabilitation experience of children with congenital muscular torticollis: a qualitative study |
| title_fullStr | Home-based rehabilitation experience of children with congenital muscular torticollis: a qualitative study |
| title_full_unstemmed | Home-based rehabilitation experience of children with congenital muscular torticollis: a qualitative study |
| title_short | Home-based rehabilitation experience of children with congenital muscular torticollis: a qualitative study |
| title_sort | home based rehabilitation experience of children with congenital muscular torticollis a qualitative study |
| topic | Congenital muscular torticollis Home-based rehabilitation children “5E” rehabilitation model Qualitative research |
| url | https://doi.org/10.1186/s12912-025-03360-x |
| work_keys_str_mv | AT youqionglu homebasedrehabilitationexperienceofchildrenwithcongenitalmusculartorticollisaqualitativestudy AT linmo homebasedrehabilitationexperienceofchildrenwithcongenitalmusculartorticollisaqualitativestudy AT gefangli homebasedrehabilitationexperienceofchildrenwithcongenitalmusculartorticollisaqualitativestudy AT danxiao homebasedrehabilitationexperienceofchildrenwithcongenitalmusculartorticollisaqualitativestudy AT chenmu homebasedrehabilitationexperienceofchildrenwithcongenitalmusculartorticollisaqualitativestudy |