DIAGNOSTIC PROBLEMS OF MUCOVISCIDOSIS AND WAYS OF SOLUTION IN RUSSIA

Mucoviscidosis is a monogenic autosomal recessive caused by the CFTR gene mutations and characterized by pronounced genetic heterogeneity and clinical polymorphism, which emphasizes the need in comprehensive diagnosis and molecular-genetic verification of the final diagnosis. Quality and duration of...

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Main Authors: A. A. Baranov, N. I. Kapranov, N. Yu. Kashirskaya, L. S. Namazova-Baranova, V. D. Sherman, O. I. Simonova, A. Yu. Tomilova, K. V. Sevost'yanov, A. M. Pushkov, A. L. Vladykin, N. V. Shatokhin
Format: Article
Language:Russian
Published: Union of pediatricians of Russia 2014-11-01
Series:Педиатрическая фармакология
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Online Access:https://www.pedpharma.ru/jour/article/view/31
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author A. A. Baranov
N. I. Kapranov
N. Yu. Kashirskaya
L. S. Namazova-Baranova
V. D. Sherman
O. I. Simonova
A. Yu. Tomilova
K. V. Sevost'yanov
A. M. Pushkov
A. L. Vladykin
N. V. Shatokhin
author_facet A. A. Baranov
N. I. Kapranov
N. Yu. Kashirskaya
L. S. Namazova-Baranova
V. D. Sherman
O. I. Simonova
A. Yu. Tomilova
K. V. Sevost'yanov
A. M. Pushkov
A. L. Vladykin
N. V. Shatokhin
author_sort A. A. Baranov
collection DOAJ
description Mucoviscidosis is a monogenic autosomal recessive caused by the CFTR gene mutations and characterized by pronounced genetic heterogeneity and clinical polymorphism, which emphasizes the need in comprehensive diagnosis and molecular-genetic verification of the final diagnosis. Quality and duration of a mucoviscidosis patient depend on early diagnosis and timely adequate therapy. The article presents mucoviscidosis diagnostic methods and protocols and capabilities of the modern molecular-genetic pathological diagnosis; a review of DNA diagnostic sets has been performed. As sets of some of the genes typical to the Russian population have not been registered in the Russian Federation, mutations in 20% of the patients cannot be specified. In order to solve this problem it is necessary to develop DNA diagnostic sets specific for the Russian Federation, ensure genetic diagnosis of the disease, including sequencing methods at the expense of the federal budget, increase the amount of information and improve quality of teaching this discipline to  students of medial universities and at postgraduate courses for appropriate specialists.
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series Педиатрическая фармакология
spelling doaj-art-1f3392869bb041e986e8b98f6eda98a22025-08-20T03:36:54ZrusUnion of pediatricians of RussiaПедиатрическая фармакология1727-57762500-30892014-11-01116162310.15690/pf.v11i6.121131DIAGNOSTIC PROBLEMS OF MUCOVISCIDOSIS AND WAYS OF SOLUTION IN RUSSIAA. A. Baranov0N. I. Kapranov1N. Yu. Kashirskaya2L. S. Namazova-Baranova3V. D. Sherman4O. I. Simonova5A. Yu. Tomilova6K. V. Sevost'yanov7A. M. Pushkov8A. L. Vladykin9N. V. Shatokhin10Scientific Center of Children’s Health, Moscow, Russian FederationResearch Center of Medical Genetics of the Russian Academy of Sciences, Moscow, Russian FederationResearch Center of Medical Genetics of the Russian Academy of Sciences, Moscow, Russian FederationScientific Center of Children’s Health, Moscow, Russian FederationResearch Center of Medical Genetics of the Russian Academy of Sciences, Moscow, Russian FederationScientific Center of Children’s Health, Moscow, Russian FederationScientific Center of Children’s Health, Moscow, Russian FederationScientific Center of Children’s Health, Moscow, Russian FederationScientific Center of Children’s Health, Moscow, Russian FederationAbbott Laboratories, Moscow, Russian FederationAbbott Laboratories, Moscow, Russian FederationMucoviscidosis is a monogenic autosomal recessive caused by the CFTR gene mutations and characterized by pronounced genetic heterogeneity and clinical polymorphism, which emphasizes the need in comprehensive diagnosis and molecular-genetic verification of the final diagnosis. Quality and duration of a mucoviscidosis patient depend on early diagnosis and timely adequate therapy. The article presents mucoviscidosis diagnostic methods and protocols and capabilities of the modern molecular-genetic pathological diagnosis; a review of DNA diagnostic sets has been performed. As sets of some of the genes typical to the Russian population have not been registered in the Russian Federation, mutations in 20% of the patients cannot be specified. In order to solve this problem it is necessary to develop DNA diagnostic sets specific for the Russian Federation, ensure genetic diagnosis of the disease, including sequencing methods at the expense of the federal budget, increase the amount of information and improve quality of teaching this discipline to  students of medial universities and at postgraduate courses for appropriate specialists.https://www.pedpharma.ru/jour/article/view/31mucoviscidosisdiagnosismolecular-genetic analysissequencingdna diagnostic setsmutationscftrchildren
spellingShingle A. A. Baranov
N. I. Kapranov
N. Yu. Kashirskaya
L. S. Namazova-Baranova
V. D. Sherman
O. I. Simonova
A. Yu. Tomilova
K. V. Sevost'yanov
A. M. Pushkov
A. L. Vladykin
N. V. Shatokhin
DIAGNOSTIC PROBLEMS OF MUCOVISCIDOSIS AND WAYS OF SOLUTION IN RUSSIA
Педиатрическая фармакология
mucoviscidosis
diagnosis
molecular-genetic analysis
sequencing
dna diagnostic sets
mutations
cftr
children
title DIAGNOSTIC PROBLEMS OF MUCOVISCIDOSIS AND WAYS OF SOLUTION IN RUSSIA
title_full DIAGNOSTIC PROBLEMS OF MUCOVISCIDOSIS AND WAYS OF SOLUTION IN RUSSIA
title_fullStr DIAGNOSTIC PROBLEMS OF MUCOVISCIDOSIS AND WAYS OF SOLUTION IN RUSSIA
title_full_unstemmed DIAGNOSTIC PROBLEMS OF MUCOVISCIDOSIS AND WAYS OF SOLUTION IN RUSSIA
title_short DIAGNOSTIC PROBLEMS OF MUCOVISCIDOSIS AND WAYS OF SOLUTION IN RUSSIA
title_sort diagnostic problems of mucoviscidosis and ways of solution in russia
topic mucoviscidosis
diagnosis
molecular-genetic analysis
sequencing
dna diagnostic sets
mutations
cftr
children
url https://www.pedpharma.ru/jour/article/view/31
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