Validation of the Turkish adaptation of FACETS-OF-PPC: a multidimensional outcome measure for pediatric palliative care
IntroductionThis study aims to validate the Turkish version of the Family-Centered Multidimensional Outcome Measure for Pediatric Palliative Care (FACETS-OF-PPC), originally developed in Germany for children with severe neurological impairments and their families.MethodsThe FACETS-OF-PPC was transla...
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Frontiers Media S.A.
2025-04-01
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| Series: | Frontiers in Oncology |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fonc.2025.1510099/full |
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| author | Fatma Zehra Oztek Celebi Fatma Zehra Oztek Celebi Yasemin Bozdag Yasemin Bozdag Songul Deniz Boybeyi Melahat Melek Oguz Melahat Melek Oguz Esma Altinel Acoglu Esma Altinel Acoglu Saliha Senel Saliha Senel Sanliay Sahin Sanliay Sahin |
| author_facet | Fatma Zehra Oztek Celebi Fatma Zehra Oztek Celebi Yasemin Bozdag Yasemin Bozdag Songul Deniz Boybeyi Melahat Melek Oguz Melahat Melek Oguz Esma Altinel Acoglu Esma Altinel Acoglu Saliha Senel Saliha Senel Sanliay Sahin Sanliay Sahin |
| author_sort | Fatma Zehra Oztek Celebi |
| collection | DOAJ |
| description | IntroductionThis study aims to validate the Turkish version of the Family-Centered Multidimensional Outcome Measure for Pediatric Palliative Care (FACETS-OF-PPC), originally developed in Germany for children with severe neurological impairments and their families.MethodsThe FACETS-OF-PPC was translated and culturally adapted following the World Health Organization's guidelines. Following expert reviews and pilot testing, the final version was completed and implemented between February and December 2021 at a pediatric palliative care center in Türkiye. Participants included family members and healthcare professionals closely involved with the patients. Exclusion criteria were age over 18, end-of-life stage, or non-Turkish speakers. Confirmatory factor analysis was conducted to evaluate the factorial validity.Results and discussionThe study analyzed 102 responses (51 parents, 51 healthcare professionals), revealing suboptimal model fit (X2/df = 2.29; CFI=0.805; TLI=0.757; SRMR=0.109; RMSEA = 0.114). Internal consistency was adequate for the "normalcy" (w = 0.87) and "caregiver competencies" (w = 0.86) scales, but insufficient for "child’s social participation" (w = 0.51), "social support" (w = 0.20), and "coping with the disease" (w = 0.50). While the Turkish version of FACETS-OF-PPC showed reliable results for certain dimensions, cultural differences and the small sample size likely affected the overall validity, suggesting the need for further refinement. |
| format | Article |
| id | doaj-art-1c4c7adfb65e4e64bfeace2049150d35 |
| institution | DOAJ |
| issn | 2234-943X |
| language | English |
| publishDate | 2025-04-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Oncology |
| spelling | doaj-art-1c4c7adfb65e4e64bfeace2049150d352025-08-20T03:08:47ZengFrontiers Media S.A.Frontiers in Oncology2234-943X2025-04-011510.3389/fonc.2025.15100991510099Validation of the Turkish adaptation of FACETS-OF-PPC: a multidimensional outcome measure for pediatric palliative careFatma Zehra Oztek Celebi0Fatma Zehra Oztek Celebi1Yasemin Bozdag2Yasemin Bozdag3Songul Deniz Boybeyi4Melahat Melek Oguz5Melahat Melek Oguz6Esma Altinel Acoglu7Esma Altinel Acoglu8Saliha Senel9Saliha Senel10Sanliay Sahin11Sanliay Sahin12Department of Pediatrics, Dr. Sami Ulus Maternity and Pediatric Health and Disease Training and Research Hospital, Ankara, TürkiyeDepartment of Pediatrics, University of Health Sciences, Istanbul, TürkiyeDepartment of Pediatrics, Dr. Sami Ulus Maternity and Pediatric Health and Disease Training and Research Hospital, Ankara, TürkiyeDepartment of Pediatrics, University of Health Sciences, Istanbul, TürkiyeDepartment of Pediatrics, Dr. Sami Ulus Maternity and Pediatric Health and Disease Training and Research Hospital, Ankara, TürkiyeDepartment of Pediatrics, Dr. Sami Ulus Maternity and Pediatric Health and Disease Training and Research Hospital, Ankara, TürkiyeDepartment of Pediatrics, University of Health Sciences, Istanbul, TürkiyeDepartment of Pediatrics, Dr. Sami Ulus Maternity and Pediatric Health and Disease Training and Research Hospital, Ankara, TürkiyeDepartment of Pediatrics, University of Health Sciences, Istanbul, TürkiyeDepartment of Pediatrics, Dr. Sami Ulus Maternity and Pediatric Health and Disease Training and Research Hospital, Ankara, TürkiyeDepartment of Pediatrics, Faculty of Medicine, Ankara Yildirim Beyazit University, Ankara, TürkiyeDepartment of Pediatrics, Dr. Sami Ulus Maternity and Pediatric Health and Disease Training and Research Hospital, Ankara, TürkiyeDepartment of Pediatrics, University of Health Sciences, Istanbul, TürkiyeIntroductionThis study aims to validate the Turkish version of the Family-Centered Multidimensional Outcome Measure for Pediatric Palliative Care (FACETS-OF-PPC), originally developed in Germany for children with severe neurological impairments and their families.MethodsThe FACETS-OF-PPC was translated and culturally adapted following the World Health Organization's guidelines. Following expert reviews and pilot testing, the final version was completed and implemented between February and December 2021 at a pediatric palliative care center in Türkiye. Participants included family members and healthcare professionals closely involved with the patients. Exclusion criteria were age over 18, end-of-life stage, or non-Turkish speakers. Confirmatory factor analysis was conducted to evaluate the factorial validity.Results and discussionThe study analyzed 102 responses (51 parents, 51 healthcare professionals), revealing suboptimal model fit (X2/df = 2.29; CFI=0.805; TLI=0.757; SRMR=0.109; RMSEA = 0.114). Internal consistency was adequate for the "normalcy" (w = 0.87) and "caregiver competencies" (w = 0.86) scales, but insufficient for "child’s social participation" (w = 0.51), "social support" (w = 0.20), and "coping with the disease" (w = 0.50). While the Turkish version of FACETS-OF-PPC showed reliable results for certain dimensions, cultural differences and the small sample size likely affected the overall validity, suggesting the need for further refinement.https://www.frontiersin.org/articles/10.3389/fonc.2025.1510099/fullchildrencultural adaptation of outcome assessmentlife limiting diseaselife treating diseaseneurological impairmentpalliative care standards |
| spellingShingle | Fatma Zehra Oztek Celebi Fatma Zehra Oztek Celebi Yasemin Bozdag Yasemin Bozdag Songul Deniz Boybeyi Melahat Melek Oguz Melahat Melek Oguz Esma Altinel Acoglu Esma Altinel Acoglu Saliha Senel Saliha Senel Sanliay Sahin Sanliay Sahin Validation of the Turkish adaptation of FACETS-OF-PPC: a multidimensional outcome measure for pediatric palliative care Frontiers in Oncology children cultural adaptation of outcome assessment life limiting disease life treating disease neurological impairment palliative care standards |
| title | Validation of the Turkish adaptation of FACETS-OF-PPC: a multidimensional outcome measure for pediatric palliative care |
| title_full | Validation of the Turkish adaptation of FACETS-OF-PPC: a multidimensional outcome measure for pediatric palliative care |
| title_fullStr | Validation of the Turkish adaptation of FACETS-OF-PPC: a multidimensional outcome measure for pediatric palliative care |
| title_full_unstemmed | Validation of the Turkish adaptation of FACETS-OF-PPC: a multidimensional outcome measure for pediatric palliative care |
| title_short | Validation of the Turkish adaptation of FACETS-OF-PPC: a multidimensional outcome measure for pediatric palliative care |
| title_sort | validation of the turkish adaptation of facets of ppc a multidimensional outcome measure for pediatric palliative care |
| topic | children cultural adaptation of outcome assessment life limiting disease life treating disease neurological impairment palliative care standards |
| url | https://www.frontiersin.org/articles/10.3389/fonc.2025.1510099/full |
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