Response to two Janus kinase inhibitors in a boy with SAVI during 2-year follow-up: case report and literature review

STING-associated vasculopathy with onset in infancy (SAVI) represents an identified rare type I interferonopathy, triggered by gain-of-function mutations in the STING1 gene. It is characterized by early-onset systemic inflammation, cutaneous vasculopathy, pulmonary involvement, and recurrent bacteri...

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Main Authors: Yiting Chen, Wenhe Zang, Haoyuan Zhong, Xianqin Deng, Wenting Zhong, Lianyu Wang, Xinying Chen
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-07-01
Series:Frontiers in Immunology
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Online Access:https://www.frontiersin.org/articles/10.3389/fimmu.2025.1615075/full
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author Yiting Chen
Yiting Chen
Wenhe Zang
Haoyuan Zhong
Xianqin Deng
Wenting Zhong
Wenting Zhong
Lianyu Wang
Lianyu Wang
Xinying Chen
Xinying Chen
Xinying Chen
author_facet Yiting Chen
Yiting Chen
Wenhe Zang
Haoyuan Zhong
Xianqin Deng
Wenting Zhong
Wenting Zhong
Lianyu Wang
Lianyu Wang
Xinying Chen
Xinying Chen
Xinying Chen
author_sort Yiting Chen
collection DOAJ
description STING-associated vasculopathy with onset in infancy (SAVI) represents an identified rare type I interferonopathy, triggered by gain-of-function mutations in the STING1 gene. It is characterized by early-onset systemic inflammation, cutaneous vasculopathy, pulmonary involvement, and recurrent bacterial infections. When conventional treatments prove ineffective in managing clinical symptoms, a high index of suspicion and prompt genetic testing become pivotal in considering the potential therapeutic role of Janus kinase (JAK) inhibitors, with ruxolitinib and tofacitinib emerging as promising treatment options. Here, we present a case involving a patient with severe lung manifestations of SAVI, treated initially with tofacitinib and later switched to ruxolitinib due to inadequate response. During a 24-month follow-up period, while symptoms stabilized under ruxolitinib, chest computed tomography (CT) scans revealed progressive changes. This case report offers valuable insights into the use of JAK inhibitors in a patient with SAVI. It illustrates the complexities of managing such cases and underscores the need for continued investigation into novel therapeutic approaches.
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institution Kabale University
issn 1664-3224
language English
publishDate 2025-07-01
publisher Frontiers Media S.A.
record_format Article
series Frontiers in Immunology
spelling doaj-art-1b0efd5d90bf417fbe28874a74d88b4a2025-08-20T03:28:04ZengFrontiers Media S.A.Frontiers in Immunology1664-32242025-07-011610.3389/fimmu.2025.16150751615075Response to two Janus kinase inhibitors in a boy with SAVI during 2-year follow-up: case report and literature reviewYiting Chen0Yiting Chen1Wenhe Zang2Haoyuan Zhong3Xianqin Deng4Wenting Zhong5Wenting Zhong6Lianyu Wang7Lianyu Wang8Xinying Chen9Xinying Chen10Xinying Chen11Department of Pediatrics, The Second Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaYoujia Xu’s Famous Expert Inheritance Studio of Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaDepartment of Radiology, The Second Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaDepartment of Pediatrics, The Second Affiliated College of Guangzhou University of Chinese Medicine, Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaDepartment of Radiology, The Second Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaDepartment of Pediatrics, The Second Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaMingzhao Du’s Inheritance Studio of Chinese Medicine of Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaDepartment of Pediatrics, The Second Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaZiyuan Wen’s Academic Inheritance Studio of Chinese Medicine of Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaDepartment of Pediatrics, The Second Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaYoujia Xu’s Famous Expert Inheritance Studio of Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaZiyuan Wen’s Academic Inheritance Studio of Chinese Medicine of Guangdong Provincial Hospital of Chinese Medicine, Guangzhou, ChinaSTING-associated vasculopathy with onset in infancy (SAVI) represents an identified rare type I interferonopathy, triggered by gain-of-function mutations in the STING1 gene. It is characterized by early-onset systemic inflammation, cutaneous vasculopathy, pulmonary involvement, and recurrent bacterial infections. When conventional treatments prove ineffective in managing clinical symptoms, a high index of suspicion and prompt genetic testing become pivotal in considering the potential therapeutic role of Janus kinase (JAK) inhibitors, with ruxolitinib and tofacitinib emerging as promising treatment options. Here, we present a case involving a patient with severe lung manifestations of SAVI, treated initially with tofacitinib and later switched to ruxolitinib due to inadequate response. During a 24-month follow-up period, while symptoms stabilized under ruxolitinib, chest computed tomography (CT) scans revealed progressive changes. This case report offers valuable insights into the use of JAK inhibitors in a patient with SAVI. It illustrates the complexities of managing such cases and underscores the need for continued investigation into novel therapeutic approaches.https://www.frontiersin.org/articles/10.3389/fimmu.2025.1615075/fullinterstitial lung diseasepulmonary arterial hypertensiontype I interferonopathySTING1Janus kinase inhibitorsruxolitinib
spellingShingle Yiting Chen
Yiting Chen
Wenhe Zang
Haoyuan Zhong
Xianqin Deng
Wenting Zhong
Wenting Zhong
Lianyu Wang
Lianyu Wang
Xinying Chen
Xinying Chen
Xinying Chen
Response to two Janus kinase inhibitors in a boy with SAVI during 2-year follow-up: case report and literature review
Frontiers in Immunology
interstitial lung disease
pulmonary arterial hypertension
type I interferonopathy
STING1
Janus kinase inhibitors
ruxolitinib
title Response to two Janus kinase inhibitors in a boy with SAVI during 2-year follow-up: case report and literature review
title_full Response to two Janus kinase inhibitors in a boy with SAVI during 2-year follow-up: case report and literature review
title_fullStr Response to two Janus kinase inhibitors in a boy with SAVI during 2-year follow-up: case report and literature review
title_full_unstemmed Response to two Janus kinase inhibitors in a boy with SAVI during 2-year follow-up: case report and literature review
title_short Response to two Janus kinase inhibitors in a boy with SAVI during 2-year follow-up: case report and literature review
title_sort response to two janus kinase inhibitors in a boy with savi during 2 year follow up case report and literature review
topic interstitial lung disease
pulmonary arterial hypertension
type I interferonopathy
STING1
Janus kinase inhibitors
ruxolitinib
url https://www.frontiersin.org/articles/10.3389/fimmu.2025.1615075/full
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