Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program.

Pediatric Long COVID has been associated with a wide variety of symptoms, conditions, and organ systems, but distinct clinical presentations, or subphenotypes, are still being elucidated. In this exploratory analysis, we identified a cohort of pediatric (age <21) patients with evidence of Long CO...

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Main Authors: Vitaly Lorman, L Charles Bailey, Xing Song, Suchitra Rao, Mady Hornig, Levon Utidjian, Hanieh Razzaghi, Asuncion Mejias, John Erik Leikauf, Seuli Bose Brill, Andrea Allen, H Timothy Bunnell, Cara Reedy, Abu Saleh Mohammad Mosa, Benjamin D Horne, Carol Reynolds Geary, Cynthia H Chuang, David A Williams, Dimitri A Christakis, Elizabeth A Chrischilles, Eneida A Mendonca, Lindsay G Cowell, Lisa McCorkell, Mei Liu, Mollie R Cummins, Ravi Jhaveri, Saul Blecker, Christopher B Forrest, RECOVER Consortium
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2025-04-01
Series:PLOS Digital Health
Online Access:https://doi.org/10.1371/journal.pdig.0000747
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author Vitaly Lorman
L Charles Bailey
Xing Song
Suchitra Rao
Mady Hornig
Levon Utidjian
Hanieh Razzaghi
Asuncion Mejias
John Erik Leikauf
Seuli Bose Brill
Andrea Allen
H Timothy Bunnell
Cara Reedy
Abu Saleh Mohammad Mosa
Benjamin D Horne
Carol Reynolds Geary
Cynthia H Chuang
David A Williams
Dimitri A Christakis
Elizabeth A Chrischilles
Eneida A Mendonca
Lindsay G Cowell
Lisa McCorkell
Mei Liu
Mollie R Cummins
Ravi Jhaveri
Saul Blecker
Christopher B Forrest
RECOVER Consortium
author_facet Vitaly Lorman
L Charles Bailey
Xing Song
Suchitra Rao
Mady Hornig
Levon Utidjian
Hanieh Razzaghi
Asuncion Mejias
John Erik Leikauf
Seuli Bose Brill
Andrea Allen
H Timothy Bunnell
Cara Reedy
Abu Saleh Mohammad Mosa
Benjamin D Horne
Carol Reynolds Geary
Cynthia H Chuang
David A Williams
Dimitri A Christakis
Elizabeth A Chrischilles
Eneida A Mendonca
Lindsay G Cowell
Lisa McCorkell
Mei Liu
Mollie R Cummins
Ravi Jhaveri
Saul Blecker
Christopher B Forrest
RECOVER Consortium
author_sort Vitaly Lorman
collection DOAJ
description Pediatric Long COVID has been associated with a wide variety of symptoms, conditions, and organ systems, but distinct clinical presentations, or subphenotypes, are still being elucidated. In this exploratory analysis, we identified a cohort of pediatric (age <21) patients with evidence of Long COVID and no pre-existing complex chronic conditions using electronic health record data from 38 institutions and used an unsupervised machine learning-based approach to identify subphenotypes. Our method, an extension of the Phe2Vec algorithm, uses tens of thousands of clinical concepts from multiple domains to represent patients' clinical histories to then identify groups of patients with similar presentations. The results indicate that cardiorespiratory presentations are most common (present in 54% of patients) followed by subphenotypes marked (in decreasing order of frequency) by musculoskeletal pain, neuropsychiatric conditions, gastrointestinal symptoms, headache, and fatigue.
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publishDate 2025-04-01
publisher Public Library of Science (PLoS)
record_format Article
series PLOS Digital Health
spelling doaj-art-1abf7de51a3b4d1da2a94ad1008c92a32025-08-20T03:13:50ZengPublic Library of Science (PLoS)PLOS Digital Health2767-31702025-04-0144e000074710.1371/journal.pdig.0000747Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program.Vitaly LormanL Charles BaileyXing SongSuchitra RaoMady HornigLevon UtidjianHanieh RazzaghiAsuncion MejiasJohn Erik LeikaufSeuli Bose BrillAndrea AllenH Timothy BunnellCara ReedyAbu Saleh Mohammad MosaBenjamin D HorneCarol Reynolds GearyCynthia H ChuangDavid A WilliamsDimitri A ChristakisElizabeth A ChrischillesEneida A MendoncaLindsay G CowellLisa McCorkellMei LiuMollie R CumminsRavi JhaveriSaul BleckerChristopher B ForrestRECOVER ConsortiumPediatric Long COVID has been associated with a wide variety of symptoms, conditions, and organ systems, but distinct clinical presentations, or subphenotypes, are still being elucidated. In this exploratory analysis, we identified a cohort of pediatric (age <21) patients with evidence of Long COVID and no pre-existing complex chronic conditions using electronic health record data from 38 institutions and used an unsupervised machine learning-based approach to identify subphenotypes. Our method, an extension of the Phe2Vec algorithm, uses tens of thousands of clinical concepts from multiple domains to represent patients' clinical histories to then identify groups of patients with similar presentations. The results indicate that cardiorespiratory presentations are most common (present in 54% of patients) followed by subphenotypes marked (in decreasing order of frequency) by musculoskeletal pain, neuropsychiatric conditions, gastrointestinal symptoms, headache, and fatigue.https://doi.org/10.1371/journal.pdig.0000747
spellingShingle Vitaly Lorman
L Charles Bailey
Xing Song
Suchitra Rao
Mady Hornig
Levon Utidjian
Hanieh Razzaghi
Asuncion Mejias
John Erik Leikauf
Seuli Bose Brill
Andrea Allen
H Timothy Bunnell
Cara Reedy
Abu Saleh Mohammad Mosa
Benjamin D Horne
Carol Reynolds Geary
Cynthia H Chuang
David A Williams
Dimitri A Christakis
Elizabeth A Chrischilles
Eneida A Mendonca
Lindsay G Cowell
Lisa McCorkell
Mei Liu
Mollie R Cummins
Ravi Jhaveri
Saul Blecker
Christopher B Forrest
RECOVER Consortium
Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program.
PLOS Digital Health
title Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program.
title_full Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program.
title_fullStr Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program.
title_full_unstemmed Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program.
title_short Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program.
title_sort pediatric long covid subphenotypes an ehr based study from the recover program
url https://doi.org/10.1371/journal.pdig.0000747
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