Difficulties of primary diagnosis in patients with suspected systemic mastocytosis

Background. Mastocytosis is a rare myeloproliferative disease based on clonal hematopoiesis of mast cells, with accumulation of mast cells in various tissues and organs. The cutaneous mastocytosis is common in the pediatric population and, in general, progression to aggressive forms is not typical....

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Main Authors: Z. K. Abdulkhalikova, M. V. Barabanshchikova, V. V. Baykov, I. M. Barkhatov, E. V. Morozova, I. S. Moiseev
Format: Article
Language:Russian
Published: ABV-press 2024-09-01
Series:Онкогематология
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Online Access:https://oncohematology.abvpress.ru/ongm/article/view/946
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author Z. K. Abdulkhalikova
M. V. Barabanshchikova
V. V. Baykov
I. M. Barkhatov
E. V. Morozova
I. S. Moiseev
author_facet Z. K. Abdulkhalikova
M. V. Barabanshchikova
V. V. Baykov
I. M. Barkhatov
E. V. Morozova
I. S. Moiseev
author_sort Z. K. Abdulkhalikova
collection DOAJ
description Background. Mastocytosis is a rare myeloproliferative disease based on clonal hematopoiesis of mast cells, with accumulation of mast cells in various tissues and organs. The cutaneous mastocytosis is common in the pediatric population and, in general, progression to aggressive forms is not typical. In the adult population, there is systemic mastocytosis with a predominance of indolent and smoldering forms according to the literature, but there aren’t epidemiological data for the Russian Federation.Aim. To evaluate the results of primary diagnostics obtained during the examination of 70 patients with suspected systemic mastocytosis.Materials and methods. The histological studies of the skin and bone marrow, mutations in the c-kit gene in the bone marrow and serum tryptase level were examined in the Raisa Gorbacheva Memorial Research Institute for Pediatric Oncology, Hematology and Transplantation in accordance with WHO 2017 criteria.Results. The diagnostic results of 70 patients with suspected mastocytosis, the diagnosis was confirmed in 71.4 % (n = 50) of patients, of which systemic mastocytosis accounted for 82 % (n = 41). The 2 most common categories were identified: indolent systemic mastocytosis in 23 (56 %) patients and widespread forms in 15 (36.5 %), with a median time of diagnosis of 12 and 5 years, respectively.Conclusion. The late diagnosis is noted in all subgroups of systemic mastocytosis.
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spelling doaj-art-19365dd532fd4f35a3f6ac9ba396c2ef2025-08-20T04:00:14ZrusABV-pressОнкогематология1818-83462413-40232024-09-0119314214810.17650/1818-8346-2024-19-3-142-148773Difficulties of primary diagnosis in patients with suspected systemic mastocytosisZ. K. Abdulkhalikova0M. V. Barabanshchikova1V. V. Baykov2I. M. Barkhatov3E. V. Morozova4I. S. Moiseev5Raisa Gorbacheva Memorial Research Institute for Pediatric Oncology, Hematology and Transplantation, I.P. Pavlov First Saint Petersburg State Medical University, Ministry of Health of RussiaRaisa Gorbacheva Memorial Research Institute for Pediatric Oncology, Hematology and Transplantation, I.P. Pavlov First Saint Petersburg State Medical University, Ministry of Health of RussiaRaisa Gorbacheva Memorial Research Institute for Pediatric Oncology, Hematology and Transplantation, I.P. Pavlov First Saint Petersburg State Medical University, Ministry of Health of RussiaRaisa Gorbacheva Memorial Research Institute for Pediatric Oncology, Hematology and Transplantation, I.P. Pavlov First Saint Petersburg State Medical University, Ministry of Health of RussiaRaisa Gorbacheva Memorial Research Institute for Pediatric Oncology, Hematology and Transplantation, I.P. Pavlov First Saint Petersburg State Medical University, Ministry of Health of RussiaRaisa Gorbacheva Memorial Research Institute for Pediatric Oncology, Hematology and Transplantation, I.P. Pavlov First Saint Petersburg State Medical University, Ministry of Health of RussiaBackground. Mastocytosis is a rare myeloproliferative disease based on clonal hematopoiesis of mast cells, with accumulation of mast cells in various tissues and organs. The cutaneous mastocytosis is common in the pediatric population and, in general, progression to aggressive forms is not typical. In the adult population, there is systemic mastocytosis with a predominance of indolent and smoldering forms according to the literature, but there aren’t epidemiological data for the Russian Federation.Aim. To evaluate the results of primary diagnostics obtained during the examination of 70 patients with suspected systemic mastocytosis.Materials and methods. The histological studies of the skin and bone marrow, mutations in the c-kit gene in the bone marrow and serum tryptase level were examined in the Raisa Gorbacheva Memorial Research Institute for Pediatric Oncology, Hematology and Transplantation in accordance with WHO 2017 criteria.Results. The diagnostic results of 70 patients with suspected mastocytosis, the diagnosis was confirmed in 71.4 % (n = 50) of patients, of which systemic mastocytosis accounted for 82 % (n = 41). The 2 most common categories were identified: indolent systemic mastocytosis in 23 (56 %) patients and widespread forms in 15 (36.5 %), with a median time of diagnosis of 12 and 5 years, respectively.Conclusion. The late diagnosis is noted in all subgroups of systemic mastocytosis.https://oncohematology.abvpress.ru/ongm/article/view/946mastocytosistryptasekit d816vmast cells
spellingShingle Z. K. Abdulkhalikova
M. V. Barabanshchikova
V. V. Baykov
I. M. Barkhatov
E. V. Morozova
I. S. Moiseev
Difficulties of primary diagnosis in patients with suspected systemic mastocytosis
Онкогематология
mastocytosis
tryptase
kit d816v
mast cells
title Difficulties of primary diagnosis in patients with suspected systemic mastocytosis
title_full Difficulties of primary diagnosis in patients with suspected systemic mastocytosis
title_fullStr Difficulties of primary diagnosis in patients with suspected systemic mastocytosis
title_full_unstemmed Difficulties of primary diagnosis in patients with suspected systemic mastocytosis
title_short Difficulties of primary diagnosis in patients with suspected systemic mastocytosis
title_sort difficulties of primary diagnosis in patients with suspected systemic mastocytosis
topic mastocytosis
tryptase
kit d816v
mast cells
url https://oncohematology.abvpress.ru/ongm/article/view/946
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AT imbarkhatov difficultiesofprimarydiagnosisinpatientswithsuspectedsystemicmastocytosis
AT evmorozova difficultiesofprimarydiagnosisinpatientswithsuspectedsystemicmastocytosis
AT ismoiseev difficultiesofprimarydiagnosisinpatientswithsuspectedsystemicmastocytosis