Healthcare Utilization, Costs of Care, and Mortality Among Patients With Spinal Muscular Atrophy
**Objectives:** To understand treatment patterns, healthcare resource utilization, and costs of care among patients with spinal muscular atrophy (SMA). **Methods:** SMA patients were identified from a large managed care population using administrative claims data from January 2006 to March 2016. Pa...
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| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Columbia Data Analytics, LLC
2019-12-01
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| Series: | Journal of Health Economics and Outcomes Research |
| Online Access: | https://doi.org/10.36469/63185 |
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| _version_ | 1823860257082834944 |
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| author | Hiangkiat Tan Tao Gu Er Chen Rajeshwari Punekar Perry B. Shieh |
| author_facet | Hiangkiat Tan Tao Gu Er Chen Rajeshwari Punekar Perry B. Shieh |
| author_sort | Hiangkiat Tan |
| collection | DOAJ |
| description | **Objectives:** To understand treatment patterns, healthcare resource utilization, and costs of care among patients with spinal muscular atrophy (SMA).
**Methods:** SMA patients were identified from a large managed care population using administrative claims data from January 2006 to March 2016. Patients were classified into infantile, childhood-onset, and late-onset groups based on age of first SMA diagnosis. They were matched 1:1 to non-SMA patients based on age, gender, geography, and health plan type.
**Results:** In the infantile group, 17.4% and 26.1% were treated with invasive and non-invasive ventilation, respectively. Uses of orthotics/orthoses and orthopedic surgery were frequent: 54.5% and 22.7% childhood group; 27.0% and 38.5% late-onset group. Mean per member per month costs in SMA vs. matched non-SMA patients was $25,517 vs. $406 (infantile); $6,357 vs. $188 (childhood-onset); $2,499 vs. $742 (late-onset).
**Conclusions:** SMA patients, particularly with infantile onset, incurred significantly higher healthcare utilization and costs than the general population. |
| format | Article |
| id | doaj-art-17f3e81814914b449f3eef3ead77528c |
| institution | Kabale University |
| issn | 2327-2236 |
| language | English |
| publishDate | 2019-12-01 |
| publisher | Columbia Data Analytics, LLC |
| record_format | Article |
| series | Journal of Health Economics and Outcomes Research |
| spelling | doaj-art-17f3e81814914b449f3eef3ead77528c2025-02-10T16:13:34ZengColumbia Data Analytics, LLCJournal of Health Economics and Outcomes Research2327-22362019-12-0163Healthcare Utilization, Costs of Care, and Mortality Among Patients With Spinal Muscular AtrophyHiangkiat TanTao GuEr ChenRajeshwari PunekarPerry B. Shieh**Objectives:** To understand treatment patterns, healthcare resource utilization, and costs of care among patients with spinal muscular atrophy (SMA). **Methods:** SMA patients were identified from a large managed care population using administrative claims data from January 2006 to March 2016. Patients were classified into infantile, childhood-onset, and late-onset groups based on age of first SMA diagnosis. They were matched 1:1 to non-SMA patients based on age, gender, geography, and health plan type. **Results:** In the infantile group, 17.4% and 26.1% were treated with invasive and non-invasive ventilation, respectively. Uses of orthotics/orthoses and orthopedic surgery were frequent: 54.5% and 22.7% childhood group; 27.0% and 38.5% late-onset group. Mean per member per month costs in SMA vs. matched non-SMA patients was $25,517 vs. $406 (infantile); $6,357 vs. $188 (childhood-onset); $2,499 vs. $742 (late-onset). **Conclusions:** SMA patients, particularly with infantile onset, incurred significantly higher healthcare utilization and costs than the general population.https://doi.org/10.36469/63185 |
| spellingShingle | Hiangkiat Tan Tao Gu Er Chen Rajeshwari Punekar Perry B. Shieh Healthcare Utilization, Costs of Care, and Mortality Among Patients With Spinal Muscular Atrophy Journal of Health Economics and Outcomes Research |
| title | Healthcare Utilization, Costs of Care, and Mortality Among Patients With Spinal Muscular Atrophy |
| title_full | Healthcare Utilization, Costs of Care, and Mortality Among Patients With Spinal Muscular Atrophy |
| title_fullStr | Healthcare Utilization, Costs of Care, and Mortality Among Patients With Spinal Muscular Atrophy |
| title_full_unstemmed | Healthcare Utilization, Costs of Care, and Mortality Among Patients With Spinal Muscular Atrophy |
| title_short | Healthcare Utilization, Costs of Care, and Mortality Among Patients With Spinal Muscular Atrophy |
| title_sort | healthcare utilization costs of care and mortality among patients with spinal muscular atrophy |
| url | https://doi.org/10.36469/63185 |
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