Full spectrum town halls for hidradenitis suppurativa: A model for advancing clinician–patient–researcher engagement in clinical and translational research

Full spectrum town halls for hidradenitis suppurativa: A model for advancing clinician–patient–researcher engagement in clinical and translational research

Hidradenitis suppurativa (HS) is a chronic, painful inflammatory skin disease affecting 0.1% of the US population. Limited understanding of HS biology and ineffective treatments leave patients dissatisfied, facing misdiagnosis, and diagnostic delays. To address these challenges, the Rockefeller Univ...

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Bibliographic Details
Main Authors: Anuradha Hashemi-Arend, Michelle A. Lowes, John W. Frew, James Krueger, Athena Gierbolini, Monisa Nayim, Melissa Samanoglu, PaMalick Mbye, Fahim Shahriar, Jonathan N. Tobin, Rhonda G. Kost
Format: Article
Language:English
Published: Cambridge University Press 2025-01-01
Series:Journal of Clinical and Translational Science
Subjects:
Patient experience
lived experience
reducing stigma
empathy for rare disease
patient advocacy
Online Access:https://www.cambridge.org/core/product/identifier/S2059866125000627/type/journal_article
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