Development of an Undiagnosed Mass Registry: Lessons Learned From Our First 100 Patients
Introduction: The Undiagnosed Mass Clinic (UMC) at our institution is a clinical and research program created to address gaps in the early diagnostic phase of the cancer care continuum for patients with potential malignant neoplasms. All patients referred to the UMC are invited to participate in the...
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2025-03-01
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| Series: | Journal of Primary Care & Community Health |
| Online Access: | https://doi.org/10.1177/21501319251325650 |
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| author | Steven W. Ressler Ivana T. Croghan Marlene E. Girardo John P. Fasolino Elizabeth A. Gilman Nate P. Erwin Nancy L. Dawson Joan M. Irizarry-Alvarado Ryan T. Hurt Karthik Ghosh |
| author_facet | Steven W. Ressler Ivana T. Croghan Marlene E. Girardo John P. Fasolino Elizabeth A. Gilman Nate P. Erwin Nancy L. Dawson Joan M. Irizarry-Alvarado Ryan T. Hurt Karthik Ghosh |
| author_sort | Steven W. Ressler |
| collection | DOAJ |
| description | Introduction: The Undiagnosed Mass Clinic (UMC) at our institution is a clinical and research program created to address gaps in the early diagnostic phase of the cancer care continuum for patients with potential malignant neoplasms. All patients referred to the UMC are invited to participate in the UMC registry, which tracks operational and clinical metrics while maintaining a repository of blood and tissue specimens for future research. Methods: We conducted a retrospective cohort study of the first 100 patients enrolled in the UMC registry. We analyzed patient demographics, final diagnoses, and the time from initial consultation to final diagnosis. Results: Most participants were White (86%), non-Hispanic (93%), and married (72%). The mean (SD) age was 64 (13.9) years. The final diagnoses of the masses were categorized as malignant/neoplastic with malignant potential (n = 53), benign (n = 36), or requiring diagnostic surveillance (n = 10). The mean (SD) time from initial consultation to final diagnosis of malignant/neoplastic with malignant potential masses significantly improved from 37.4 (36.6) days for the first 50 participants to 17.3 (19.7) days for the next 50 participants ( P = .006). Conclusions: These initial insights from the UMC registry will help direct future efforts to improve the care of patients with potential malignant neoplasms. |
| format | Article |
| id | doaj-art-16bfe84759da476d8c2b177d4df81e68 |
| institution | DOAJ |
| issn | 2150-1327 |
| language | English |
| publishDate | 2025-03-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of Primary Care & Community Health |
| spelling | doaj-art-16bfe84759da476d8c2b177d4df81e682025-08-20T02:57:14ZengSAGE PublishingJournal of Primary Care & Community Health2150-13272025-03-011610.1177/21501319251325650Development of an Undiagnosed Mass Registry: Lessons Learned From Our First 100 PatientsSteven W. Ressler0Ivana T. Croghan1Marlene E. Girardo2John P. Fasolino3Elizabeth A. Gilman4Nate P. Erwin5Nancy L. Dawson6Joan M. Irizarry-Alvarado7Ryan T. Hurt8Karthik Ghosh9Mayo Clinic, Scottsdale, AZ, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Scottsdale, AZ, USAMayo Clinic, Scottsdale, AZ, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Jacksonville, FL, USAMayo Clinic, Jacksonville, FL, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Rochester, MN, USAIntroduction: The Undiagnosed Mass Clinic (UMC) at our institution is a clinical and research program created to address gaps in the early diagnostic phase of the cancer care continuum for patients with potential malignant neoplasms. All patients referred to the UMC are invited to participate in the UMC registry, which tracks operational and clinical metrics while maintaining a repository of blood and tissue specimens for future research. Methods: We conducted a retrospective cohort study of the first 100 patients enrolled in the UMC registry. We analyzed patient demographics, final diagnoses, and the time from initial consultation to final diagnosis. Results: Most participants were White (86%), non-Hispanic (93%), and married (72%). The mean (SD) age was 64 (13.9) years. The final diagnoses of the masses were categorized as malignant/neoplastic with malignant potential (n = 53), benign (n = 36), or requiring diagnostic surveillance (n = 10). The mean (SD) time from initial consultation to final diagnosis of malignant/neoplastic with malignant potential masses significantly improved from 37.4 (36.6) days for the first 50 participants to 17.3 (19.7) days for the next 50 participants ( P = .006). Conclusions: These initial insights from the UMC registry will help direct future efforts to improve the care of patients with potential malignant neoplasms.https://doi.org/10.1177/21501319251325650 |
| spellingShingle | Steven W. Ressler Ivana T. Croghan Marlene E. Girardo John P. Fasolino Elizabeth A. Gilman Nate P. Erwin Nancy L. Dawson Joan M. Irizarry-Alvarado Ryan T. Hurt Karthik Ghosh Development of an Undiagnosed Mass Registry: Lessons Learned From Our First 100 Patients Journal of Primary Care & Community Health |
| title | Development of an Undiagnosed Mass Registry: Lessons Learned From Our First 100 Patients |
| title_full | Development of an Undiagnosed Mass Registry: Lessons Learned From Our First 100 Patients |
| title_fullStr | Development of an Undiagnosed Mass Registry: Lessons Learned From Our First 100 Patients |
| title_full_unstemmed | Development of an Undiagnosed Mass Registry: Lessons Learned From Our First 100 Patients |
| title_short | Development of an Undiagnosed Mass Registry: Lessons Learned From Our First 100 Patients |
| title_sort | development of an undiagnosed mass registry lessons learned from our first 100 patients |
| url | https://doi.org/10.1177/21501319251325650 |
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