Severe Generalized Epidermolysis Bullosa Simplex in Two Hong Kong Children due to De Novo Variants in KRT14 and KRT5

We report two Hong Kong children with severe generalized epidermolysis bullosa simplex (EBS), the most severe form of EBS, without a family history of EBS. EBS is a rare genodermatosis usually inherited in an autosomal dominant fashion although rare autosomal recessive cases have been reported. Gene...

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Main Authors: Shuk Ching Chong, Kam Lun Hon, Fernando Scaglia, Chung Mo Chow, Yu Ming Fu, Tor Wo Chiu, Alexander K. C. Leung
Format: Article
Language:English
Published: Wiley 2020-01-01
Series:Case Reports in Pediatrics
Online Access:http://dx.doi.org/10.1155/2020/4206348
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author Shuk Ching Chong
Kam Lun Hon
Fernando Scaglia
Chung Mo Chow
Yu Ming Fu
Tor Wo Chiu
Alexander K. C. Leung
author_facet Shuk Ching Chong
Kam Lun Hon
Fernando Scaglia
Chung Mo Chow
Yu Ming Fu
Tor Wo Chiu
Alexander K. C. Leung
author_sort Shuk Ching Chong
collection DOAJ
description We report two Hong Kong children with severe generalized epidermolysis bullosa simplex (EBS), the most severe form of EBS, without a family history of EBS. EBS is a rare genodermatosis usually inherited in an autosomal dominant fashion although rare autosomal recessive cases have been reported. Genetic studies in these patients showed that the first case was due to a novel de novo heterozygous variant, c.377T>G (NM_000526.5 (c.377T>G, p.Leu126Arg)) in the KRT14 gene and the second case was due to a rare de novo heterozygous variant c.527A>G (NM_000424.4, c.527A>G, p.Asn176Ser) in the KRT5 gene. To our knowledge, the c.377T>G variant in the KRT14 gene has not been previously reported, and the c.527A>G variant in the KRT5 gene is a rare cause of severe generalized EBS. In severe generalized EBS, infants exhibit severe symptoms at the onset; however, they tend to improve with time. A precise genetic diagnosis in these two cases aided in counseling the families concerning the prognosis in their affected children and the recurrence risk for future pregnancies.
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language English
publishDate 2020-01-01
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series Case Reports in Pediatrics
spelling doaj-art-16590c4e3dfe428caedb744c1e47af902025-08-20T02:02:34ZengWileyCase Reports in Pediatrics2090-68032090-68112020-01-01202010.1155/2020/42063484206348Severe Generalized Epidermolysis Bullosa Simplex in Two Hong Kong Children due to De Novo Variants in KRT14 and KRT5Shuk Ching Chong0Kam Lun Hon1Fernando Scaglia2Chung Mo Chow3Yu Ming Fu4Tor Wo Chiu5Alexander K. C. Leung6Department of Paediatrics, The Chinese University of Hong Kong, Prince of Wales Hospital, Shatin, Hong KongDepartment of Paediatrics, The Chinese University of Hong Kong, Prince of Wales Hospital, Shatin, Hong KongThe Chinese University of Hong Kong, Baylor College of Medicine Joint Center for Medical Genetics, Prince of Wales Hospital, Shatin, Hong KongDepartment of Paediatrics, The Chinese University of Hong Kong, Prince of Wales Hospital, Shatin, Hong KongDepartment of Paediatrics and Adolescent Medicine, Princess Margaret Hospital, Kwai Chung, Hong KongDivision of Plastic Reconstructive and Aesthetic Surgery, The Chinese University of Hong Kong, Prince of Wales Hospital, Shatin, Hong KongDepartment of Pediatrics, The University of Calgary and the Alberta Children’s Hospital, Calgary, Alberta, CanadaWe report two Hong Kong children with severe generalized epidermolysis bullosa simplex (EBS), the most severe form of EBS, without a family history of EBS. EBS is a rare genodermatosis usually inherited in an autosomal dominant fashion although rare autosomal recessive cases have been reported. Genetic studies in these patients showed that the first case was due to a novel de novo heterozygous variant, c.377T>G (NM_000526.5 (c.377T>G, p.Leu126Arg)) in the KRT14 gene and the second case was due to a rare de novo heterozygous variant c.527A>G (NM_000424.4, c.527A>G, p.Asn176Ser) in the KRT5 gene. To our knowledge, the c.377T>G variant in the KRT14 gene has not been previously reported, and the c.527A>G variant in the KRT5 gene is a rare cause of severe generalized EBS. In severe generalized EBS, infants exhibit severe symptoms at the onset; however, they tend to improve with time. A precise genetic diagnosis in these two cases aided in counseling the families concerning the prognosis in their affected children and the recurrence risk for future pregnancies.http://dx.doi.org/10.1155/2020/4206348
spellingShingle Shuk Ching Chong
Kam Lun Hon
Fernando Scaglia
Chung Mo Chow
Yu Ming Fu
Tor Wo Chiu
Alexander K. C. Leung
Severe Generalized Epidermolysis Bullosa Simplex in Two Hong Kong Children due to De Novo Variants in KRT14 and KRT5
Case Reports in Pediatrics
title Severe Generalized Epidermolysis Bullosa Simplex in Two Hong Kong Children due to De Novo Variants in KRT14 and KRT5
title_full Severe Generalized Epidermolysis Bullosa Simplex in Two Hong Kong Children due to De Novo Variants in KRT14 and KRT5
title_fullStr Severe Generalized Epidermolysis Bullosa Simplex in Two Hong Kong Children due to De Novo Variants in KRT14 and KRT5
title_full_unstemmed Severe Generalized Epidermolysis Bullosa Simplex in Two Hong Kong Children due to De Novo Variants in KRT14 and KRT5
title_short Severe Generalized Epidermolysis Bullosa Simplex in Two Hong Kong Children due to De Novo Variants in KRT14 and KRT5
title_sort severe generalized epidermolysis bullosa simplex in two hong kong children due to de novo variants in krt14 and krt5
url http://dx.doi.org/10.1155/2020/4206348
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