Distress, problems and unmet rehabilitation needs after treatment for gynecological cancer

Abstract Introduction The prevalence of distress, problems and need for rehabilitation among women treated for gynecological cancer is largely unknown. The aims of this study were to examine the prevalence of distress, problems and unmet rehabilitation needs in the first years after treatment for gy...

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Main Authors: Mette Seland, Katrine Skrede, Kristina Lindemann, Tone Skaali, Rune Blomhoff, Kjersti Bruheim, Torbjørn Wisløff, Lene Thorsen
Format: Article
Language:English
Published: Wiley 2022-03-01
Series:Acta Obstetricia et Gynecologica Scandinavica
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Online Access:https://doi.org/10.1111/aogs.14310
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author Mette Seland
Katrine Skrede
Kristina Lindemann
Tone Skaali
Rune Blomhoff
Kjersti Bruheim
Torbjørn Wisløff
Lene Thorsen
author_facet Mette Seland
Katrine Skrede
Kristina Lindemann
Tone Skaali
Rune Blomhoff
Kjersti Bruheim
Torbjørn Wisløff
Lene Thorsen
author_sort Mette Seland
collection DOAJ
description Abstract Introduction The prevalence of distress, problems and need for rehabilitation among women treated for gynecological cancer is largely unknown. The aims of this study were to examine the prevalence of distress, problems and unmet rehabilitation needs in the first years after treatment for gynecological cancer. Material and methods Women treated for gynecological cancer within the last 2 years were invited. Participants responded to the National Comprehensive Cancer Network Distress Thermometer and Problem List measuring distress and problems. They also answered a questionnaire regarding physical endurance, muscle strength, and need for rehabilitation services. Results Of 114 eligible women, 92 (81%) agreed to participate. Mean time since last treatment was 7.6 months (range 0–24.5 months). A total of 57% of the participants reported distress. The four most common problems reported were fatigue (58%), tingling in hands/feet (54%), worry (53%), and problems with memory/concentration (50%). Problems associated with distress were: dealing with partner, all emotional problems (i.e. depression, fears, nervousness, sadness, worry, and loss of interest in usual activities), appearance, memory/concentration, pain, sex, sleep, and problems with physical endurance and muscle strength. Fifty‐two percent reported unmet needs for rehabilitation services. Women with distress reported more unmet rehabilitation needs than those in the non‐distressed group. Conclusions The prevalence of distress in this population of women treated for gynecological cancer was high. Having a high number of problems and having unmet needs for rehabilitation services were both associated with distress. Hence, measurement of distress seems to be helpful when assessing the need for rehabilitation services.
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spelling doaj-art-1417fafb0c64472cb98fa229f9ff6d422025-08-20T02:36:42ZengWileyActa Obstetricia et Gynecologica Scandinavica0001-63491600-04122022-03-01101331332210.1111/aogs.14310Distress, problems and unmet rehabilitation needs after treatment for gynecological cancerMette Seland0Katrine Skrede1Kristina Lindemann2Tone Skaali3Rune Blomhoff4Kjersti Bruheim5Torbjørn Wisløff6Lene Thorsen7Department of Clinical Service Division of Cancer Medicine Oslo University Hospital Oslo NorwayDepartment of Clinical Service Division of Cancer Medicine Oslo University Hospital Oslo NorwayDepartment of Gynecologic Oncology Division of Cancer Medicine Oslo University Hospital Oslo NorwayDepartment of Clinical Service Division of Cancer Medicine Oslo University Hospital Oslo NorwayDepartment of Clinical Service Division of Cancer Medicine Oslo University Hospital Oslo NorwayDepartment of Cancer Treatment Division of Cancer Medicine Oslo University Hospital Oslo NorwayDepartment of Community Medicine UiT The Arctic University of Norway Tromsø NorwayDepartment of Clinical Service Division of Cancer Medicine Oslo University Hospital Oslo NorwayAbstract Introduction The prevalence of distress, problems and need for rehabilitation among women treated for gynecological cancer is largely unknown. The aims of this study were to examine the prevalence of distress, problems and unmet rehabilitation needs in the first years after treatment for gynecological cancer. Material and methods Women treated for gynecological cancer within the last 2 years were invited. Participants responded to the National Comprehensive Cancer Network Distress Thermometer and Problem List measuring distress and problems. They also answered a questionnaire regarding physical endurance, muscle strength, and need for rehabilitation services. Results Of 114 eligible women, 92 (81%) agreed to participate. Mean time since last treatment was 7.6 months (range 0–24.5 months). A total of 57% of the participants reported distress. The four most common problems reported were fatigue (58%), tingling in hands/feet (54%), worry (53%), and problems with memory/concentration (50%). Problems associated with distress were: dealing with partner, all emotional problems (i.e. depression, fears, nervousness, sadness, worry, and loss of interest in usual activities), appearance, memory/concentration, pain, sex, sleep, and problems with physical endurance and muscle strength. Fifty‐two percent reported unmet needs for rehabilitation services. Women with distress reported more unmet rehabilitation needs than those in the non‐distressed group. Conclusions The prevalence of distress in this population of women treated for gynecological cancer was high. Having a high number of problems and having unmet needs for rehabilitation services were both associated with distress. Hence, measurement of distress seems to be helpful when assessing the need for rehabilitation services.https://doi.org/10.1111/aogs.14310distressgynecological cancerproblemssurvivorunmet rehabilitation needs
spellingShingle Mette Seland
Katrine Skrede
Kristina Lindemann
Tone Skaali
Rune Blomhoff
Kjersti Bruheim
Torbjørn Wisløff
Lene Thorsen
Distress, problems and unmet rehabilitation needs after treatment for gynecological cancer
Acta Obstetricia et Gynecologica Scandinavica
distress
gynecological cancer
problems
survivor
unmet rehabilitation needs
title Distress, problems and unmet rehabilitation needs after treatment for gynecological cancer
title_full Distress, problems and unmet rehabilitation needs after treatment for gynecological cancer
title_fullStr Distress, problems and unmet rehabilitation needs after treatment for gynecological cancer
title_full_unstemmed Distress, problems and unmet rehabilitation needs after treatment for gynecological cancer
title_short Distress, problems and unmet rehabilitation needs after treatment for gynecological cancer
title_sort distress problems and unmet rehabilitation needs after treatment for gynecological cancer
topic distress
gynecological cancer
problems
survivor
unmet rehabilitation needs
url https://doi.org/10.1111/aogs.14310
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