Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation

Background: Stigma is a barrier to inclusion for people with disabilities and mental health conditions. There is increasing recognition of the need to address stigma within disability inclusive programmes, but limited research is available on what are effective participatory approaches to stigma red...

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Main Authors: Maria Zuurmond, Augustina Naami, Lyla Adwan-Kamara, Cathy Stephen, Sapana Basnet, Caroline Vanderick, Mohammed Chantimah, Abigail Nana Asamoah, Daisy Macdonald, Crick Lund
Format: Article
Language:English
Published: AOSIS 2025-01-01
Series:African Journal of Disability
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Online Access:https://ajod.org/index.php/ajod/article/view/1508
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author Maria Zuurmond
Augustina Naami
Lyla Adwan-Kamara
Cathy Stephen
Sapana Basnet
Caroline Vanderick
Mohammed Chantimah
Abigail Nana Asamoah
Daisy Macdonald
Crick Lund
author_facet Maria Zuurmond
Augustina Naami
Lyla Adwan-Kamara
Cathy Stephen
Sapana Basnet
Caroline Vanderick
Mohammed Chantimah
Abigail Nana Asamoah
Daisy Macdonald
Crick Lund
author_sort Maria Zuurmond
collection DOAJ
description Background: Stigma is a barrier to inclusion for people with disabilities and mental health conditions. There is increasing recognition of the need to address stigma within disability inclusive programmes, but limited research is available on what are effective participatory approaches to stigma reduction interventions. Objectives: (1) To document participatory approaches used in the design and delivery of disability stigma reduction interventions in a disability and mental health programme in Ghana and (2) to understand the experience of programme implementers and participants in these processes, with particular attention to the leadership and involvement of people with disabilities. Method: A mixed-methods study was conducted. The data were drawn from a purposive sample of 20 in-depth interviews (IDIs) with programme staff, partners and key stakeholders, and 12 focus group discussions (FGDs) with self-help group (SHG) members, organisation of people with disabilities (OPD) members, and disability champions. We conducted thematic analysis using deductive and inductive approaches. Results: The programme adopted several approaches to participation at design and implementation stages, with a focus on the leadership of people with disabilities and people with mental health conditions. The process was seen to promote acceptability of stigma reduction approaches. Providing opportunities for building and strengthening relationships with a wide range of stakeholders was key to successful implementation. Understanding, and engaging with, power dynamics in the local context also provided important benefits. Conclusions: Participation of people with disabilities and mental health conditions is essential for the design and delivery of stigma reduction programmes in Ghana. Contribution: This study provided lessons from the field on the value of participation in reducing stigma, and the role of key stakeholders, particularly people with disabilities and mental health conditions.
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institution Kabale University
issn 2223-9170
2226-7220
language English
publishDate 2025-01-01
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series African Journal of Disability
spelling doaj-art-11f8d5725e9c4a108bcf5d53360c7d472025-02-11T13:22:08ZengAOSISAfrican Journal of Disability2223-91702226-72202025-01-01140e1e910.4102/ajod.v14i0.1508438Stigma reduction in a disability and mental health programme in Ghana: Lessons in participationMaria Zuurmond0Augustina Naami1Lyla Adwan-Kamara2Cathy Stephen3Sapana Basnet4Caroline Vanderick5Mohammed Chantimah6Abigail Nana Asamoah7Daisy Macdonald8Crick Lund9Tropical Health, LondonTropical Health, London, United Kingdom; and Department of Social Work, University of Ghana, AccraOptions Consultancy Services Ltd, LondonSightsavers, Haywards HeathSightsavers, Haywards HeathTropical Health, LondonGhana Education Service, TamaleDepartment of Social Work, University of Ghana, AccraTropical Health, LondonCentre for Global Mental Health, Department of Health Service and Population Research, Institute of Psychiatry, Psychology and Neuroscience, King’s College London, United Kingdom; and Alan J Flisher Centre for Public Mental Health, Department of Psychiatry and Mental Health, University Cape Town, Cape TownBackground: Stigma is a barrier to inclusion for people with disabilities and mental health conditions. There is increasing recognition of the need to address stigma within disability inclusive programmes, but limited research is available on what are effective participatory approaches to stigma reduction interventions. Objectives: (1) To document participatory approaches used in the design and delivery of disability stigma reduction interventions in a disability and mental health programme in Ghana and (2) to understand the experience of programme implementers and participants in these processes, with particular attention to the leadership and involvement of people with disabilities. Method: A mixed-methods study was conducted. The data were drawn from a purposive sample of 20 in-depth interviews (IDIs) with programme staff, partners and key stakeholders, and 12 focus group discussions (FGDs) with self-help group (SHG) members, organisation of people with disabilities (OPD) members, and disability champions. We conducted thematic analysis using deductive and inductive approaches. Results: The programme adopted several approaches to participation at design and implementation stages, with a focus on the leadership of people with disabilities and people with mental health conditions. The process was seen to promote acceptability of stigma reduction approaches. Providing opportunities for building and strengthening relationships with a wide range of stakeholders was key to successful implementation. Understanding, and engaging with, power dynamics in the local context also provided important benefits. Conclusions: Participation of people with disabilities and mental health conditions is essential for the design and delivery of stigma reduction programmes in Ghana. Contribution: This study provided lessons from the field on the value of participation in reducing stigma, and the role of key stakeholders, particularly people with disabilities and mental health conditions.https://ajod.org/index.php/ajod/article/view/1508people with disabilitiespeople with mental health conditionsstigmadiscriminationimplementation lessonsparticipationinclusion.
spellingShingle Maria Zuurmond
Augustina Naami
Lyla Adwan-Kamara
Cathy Stephen
Sapana Basnet
Caroline Vanderick
Mohammed Chantimah
Abigail Nana Asamoah
Daisy Macdonald
Crick Lund
Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation
African Journal of Disability
people with disabilities
people with mental health conditions
stigma
discrimination
implementation lessons
participation
inclusion.
title Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation
title_full Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation
title_fullStr Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation
title_full_unstemmed Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation
title_short Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation
title_sort stigma reduction in a disability and mental health programme in ghana lessons in participation
topic people with disabilities
people with mental health conditions
stigma
discrimination
implementation lessons
participation
inclusion.
url https://ajod.org/index.php/ajod/article/view/1508
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