331 A qualitative analysis of at-home central venous catheter (CVC) care by caregivers of children with intestinal failure
Objectives/Goals: Children with intestinal failure rely on central venous catheters (CVCs) for at-home delivery of hydration and nutrition to sustain life. CVC associated infections are the leading driver of morbidity in this population. It is currently unknown what challenges caregivers of this pat...
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2025-04-01
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| Series: | Journal of Clinical and Translational Science |
| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866124009622/type/journal_article |
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| author | Atu Agawu Rachel Carmen Ceasar Mark A Frey Lorraine Kelley-Quon |
| author_facet | Atu Agawu Rachel Carmen Ceasar Mark A Frey Lorraine Kelley-Quon |
| author_sort | Atu Agawu |
| collection | DOAJ |
| description | Objectives/Goals: Children with intestinal failure rely on central venous catheters (CVCs) for at-home delivery of hydration and nutrition to sustain life. CVC associated infections are the leading driver of morbidity in this population. It is currently unknown what challenges caregivers of this patients face for at-home infection prevention tasks. Methods/Study Population: This is a qualitative analysis of the clinical implementation of at-home CVC care. Participants will be caregivers of children with intestinal failure in the Children’s Hospital of Los Angeles’ Intestinal Rehabilitation Program (a program with a large Spanish speaking population). The study team will conduct, record, and transcribe four synchronous remote focus groups using Zoom, two in English and two in Spanish, with 4–6 participants per focus group (n = 16–24). Questions will focus on caregiver experiences of CVC care. Transcripts will be analyzed using rapid qualitative analysis, an implementation science-oriented approach. The study team will review transcripts and summarize key points into matrices to examine relevant themes and quotes efficiently and systematically, using midpoint data analysis. Results/Anticipated Results: Illustrative quotes of all themes and domains discussed by caregivers will provide a person-centered overview of the specific types of facilitators and barriers to infection prevention task performance. Focus groups will be conducted in January 2025 with analysis in February. Facilitators and barriers will be mapped onto the Capability, Opportunity and Motivation behavioral model (COM-B), allowing for additional topics participants introduce by participants. Facilitators and barriers will affect all domains of the COM-B model and may also describe factors that cross multiple domains or fall outside the COM-B domains. Facilitators and barriers may differ between English and Spanish speaking caregivers. Discussion/Significance of Impact: Identifying facilitators of and barriers to infection prevention tasks will allow clinicians to maximize infection prevention efforts and improve quality of life for caregivers of children with intestinal failure. Additionally, this bilingual study will have improved external validity and address potential language-related barriers to care. |
| format | Article |
| id | doaj-art-10d4b88a475d406bbb03c18654fa2e2d |
| institution | DOAJ |
| issn | 2059-8661 |
| language | English |
| publishDate | 2025-04-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj-art-10d4b88a475d406bbb03c18654fa2e2d2025-08-20T02:40:52ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-04-01910210210.1017/cts.2024.962331 A qualitative analysis of at-home central venous catheter (CVC) care by caregivers of children with intestinal failureAtu Agawu0Rachel Carmen1 Ceasar2Mark A3 Frey4Lorraine Kelley-Quon5University of Southern California | CHildren’s Hospital of Los AngelesUniversity of Southern California | CHildren’s Hospital of Los AngelesUniversity of Southern CaliforniaUniversity of Southern California | CHildren’s Hospital of Los AngelesUniversity of Southern CaliforniaUniversity of Southern CaliforniaObjectives/Goals: Children with intestinal failure rely on central venous catheters (CVCs) for at-home delivery of hydration and nutrition to sustain life. CVC associated infections are the leading driver of morbidity in this population. It is currently unknown what challenges caregivers of this patients face for at-home infection prevention tasks. Methods/Study Population: This is a qualitative analysis of the clinical implementation of at-home CVC care. Participants will be caregivers of children with intestinal failure in the Children’s Hospital of Los Angeles’ Intestinal Rehabilitation Program (a program with a large Spanish speaking population). The study team will conduct, record, and transcribe four synchronous remote focus groups using Zoom, two in English and two in Spanish, with 4–6 participants per focus group (n = 16–24). Questions will focus on caregiver experiences of CVC care. Transcripts will be analyzed using rapid qualitative analysis, an implementation science-oriented approach. The study team will review transcripts and summarize key points into matrices to examine relevant themes and quotes efficiently and systematically, using midpoint data analysis. Results/Anticipated Results: Illustrative quotes of all themes and domains discussed by caregivers will provide a person-centered overview of the specific types of facilitators and barriers to infection prevention task performance. Focus groups will be conducted in January 2025 with analysis in February. Facilitators and barriers will be mapped onto the Capability, Opportunity and Motivation behavioral model (COM-B), allowing for additional topics participants introduce by participants. Facilitators and barriers will affect all domains of the COM-B model and may also describe factors that cross multiple domains or fall outside the COM-B domains. Facilitators and barriers may differ between English and Spanish speaking caregivers. Discussion/Significance of Impact: Identifying facilitators of and barriers to infection prevention tasks will allow clinicians to maximize infection prevention efforts and improve quality of life for caregivers of children with intestinal failure. Additionally, this bilingual study will have improved external validity and address potential language-related barriers to care.https://www.cambridge.org/core/product/identifier/S2059866124009622/type/journal_article |
| spellingShingle | Atu Agawu Rachel Carmen Ceasar Mark A Frey Lorraine Kelley-Quon 331 A qualitative analysis of at-home central venous catheter (CVC) care by caregivers of children with intestinal failure Journal of Clinical and Translational Science |
| title | 331 A qualitative analysis of at-home central venous catheter (CVC) care by caregivers of children with intestinal failure |
| title_full | 331 A qualitative analysis of at-home central venous catheter (CVC) care by caregivers of children with intestinal failure |
| title_fullStr | 331 A qualitative analysis of at-home central venous catheter (CVC) care by caregivers of children with intestinal failure |
| title_full_unstemmed | 331 A qualitative analysis of at-home central venous catheter (CVC) care by caregivers of children with intestinal failure |
| title_short | 331 A qualitative analysis of at-home central venous catheter (CVC) care by caregivers of children with intestinal failure |
| title_sort | 331 a qualitative analysis of at home central venous catheter cvc care by caregivers of children with intestinal failure |
| url | https://www.cambridge.org/core/product/identifier/S2059866124009622/type/journal_article |
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