Peripheral precocious puberty in girls with McCune-Albright syndrome: a case series

ABSTRACT Objective: To describe the follow-up of girls with peripheral precocious puberty (PPP) due to McCune-Albright syndrome (MAS). Subjects and methods: Data from 18 females, including anthropometric and reproductive outcomes, were evaluated. Genetic analysis was performed on DNA from peripheral...

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Main Authors: Aline Guimarães Faria, Luciana R. Montenegro, Alexander Augusto Lima Jorge, Regina Matsunaga Martin, Maria Candida Barisson Villares Fragoso, Flavia R. Tinano, Carlos E. Seraphim, Ana Pinheiro Machado Canton, Larissa G. Gomes, Gabriel A. Martos-Moreno, Irene Tarjuelo García, Atilano Carcavilla, Mireia Tirado-Capistros, Nadja Cristhina Souza-Pinto, Jesús Argente, Ana Claudia Latronico, Berenice Bilharinho Mendonca, Vinicius Nahime Brito
Format: Article
Language:English
Published: Brazilian Society of Endocrinology and Metabolism 2025-05-01
Series:Archives of Endocrinology and Metabolism
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Online Access:http://www.scielo.br/scielo.php?script=sci_arttext&pid=S2359-39972025000201109&lng=en&tlng=en
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author Aline Guimarães Faria
Luciana R. Montenegro
Alexander Augusto Lima Jorge
Regina Matsunaga Martin
Maria Candida Barisson Villares Fragoso
Flavia R. Tinano
Carlos E. Seraphim
Ana Pinheiro Machado Canton
Larissa G. Gomes
Gabriel A. Martos-Moreno
Irene Tarjuelo García
Atilano Carcavilla
Mireia Tirado-Capistros
Nadja Cristhina Souza-Pinto
Jesús Argente
Ana Claudia Latronico
Berenice Bilharinho Mendonca
Vinicius Nahime Brito
author_facet Aline Guimarães Faria
Luciana R. Montenegro
Alexander Augusto Lima Jorge
Regina Matsunaga Martin
Maria Candida Barisson Villares Fragoso
Flavia R. Tinano
Carlos E. Seraphim
Ana Pinheiro Machado Canton
Larissa G. Gomes
Gabriel A. Martos-Moreno
Irene Tarjuelo García
Atilano Carcavilla
Mireia Tirado-Capistros
Nadja Cristhina Souza-Pinto
Jesús Argente
Ana Claudia Latronico
Berenice Bilharinho Mendonca
Vinicius Nahime Brito
author_sort Aline Guimarães Faria
collection DOAJ
description ABSTRACT Objective: To describe the follow-up of girls with peripheral precocious puberty (PPP) due to McCune-Albright syndrome (MAS). Subjects and methods: Data from 18 females, including anthropometric and reproductive outcomes, were evaluated. Genetic analysis was performed on DNA from peripheral leukocytes via digital PCR. Results: Clinical manifestations of PPP were isolated thelarche, thelarche plus vaginal bleeding, or isolated vaginal bleeding in 44.5%, 33.3%, and 22.2%, respectively, at an early age (3.3 ± 1.6 years). At diagnosis, basal LH and FSH levels were suppressed in 100% and 72.2% of cases, respectively, and estradiol ranged from prepubertal to high levels. The mean bone age advancement was 2.3 ± 1.9 years. Treatment included medroxyprogesterone acetate, tamoxifen, aromatase inhibitors, and ketoconazole, individually or in combination for 5 ± 2.14 years, with partial or complete control of puberty. Secondary central precocious puberty was diagnosed in 57.1% (8/14) of the patients. Fibrous dysplasia was diagnosed in 11 patients and managed with bisphosphonates for those with bone pain. The mean adult height was 155.1 ± 8.7 cm (-1.17 SDS) in 10 patients. Menarche occurred at a mean age of 12.2 ± 1.04 years, 70% reported regular menstrual cycles and only one female desired pregnancy. Genetic diagnosis was established in 52.9% (9/17) of the patients. Conclusion: Medical treatment of PPP was effective in girls with MAS and led to preservation of adult height potential, and reproductive function was normal when patients reached adulthood
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spelling doaj-art-0e359a7da64d4956bc7efd2b2734fad52025-08-20T03:48:19ZengBrazilian Society of Endocrinology and MetabolismArchives of Endocrinology and Metabolism2359-42922025-05-0169210.20945/2359-4292-2024-0459Peripheral precocious puberty in girls with McCune-Albright syndrome: a case seriesAline Guimarães Fariahttps://orcid.org/0000-0001-7209-4526Luciana R. Montenegrohttps://orcid.org/0000-0002-8401-7613Alexander Augusto Lima Jorgehttps://orcid.org/0000-0003-2567-7360Regina Matsunaga Martinhttps://orcid.org/0000-0002-5943-7122Maria Candida Barisson Villares Fragosohttps://orcid.org/0000-0001-6150-1915Flavia R. Tinanohttps://orcid.org/0000-0001-8547-6507Carlos E. Seraphimhttps://orcid.org/0000-0002-4890-9470Ana Pinheiro Machado Cantonhttps://orcid.org/0000-0001-8662-5412Larissa G. Gomeshttps://orcid.org/0000-0002-0902-0142Gabriel A. Martos-Morenohttps://orcid.org/0000-0001-5524-2646Irene Tarjuelo Garcíahttps://orcid.org/0009-0003-7473-8454Atilano Carcavillahttps://orcid.org/0000-0003-1735-0237Mireia Tirado-Capistroshttps://orcid.org/0000-0001-9623-9240Nadja Cristhina Souza-Pintohttps://orcid.org/0000-0003-4206-964XJesús Argentehttps://orcid.org/0000-0001-5826-0276Ana Claudia Latronicohttps://orcid.org/0000-0001-6782-693XBerenice Bilharinho Mendoncahttps://orcid.org/0000-0003-1762-1084Vinicius Nahime Britohttps://orcid.org/0000-0003-4140-6296ABSTRACT Objective: To describe the follow-up of girls with peripheral precocious puberty (PPP) due to McCune-Albright syndrome (MAS). Subjects and methods: Data from 18 females, including anthropometric and reproductive outcomes, were evaluated. Genetic analysis was performed on DNA from peripheral leukocytes via digital PCR. Results: Clinical manifestations of PPP were isolated thelarche, thelarche plus vaginal bleeding, or isolated vaginal bleeding in 44.5%, 33.3%, and 22.2%, respectively, at an early age (3.3 ± 1.6 years). At diagnosis, basal LH and FSH levels were suppressed in 100% and 72.2% of cases, respectively, and estradiol ranged from prepubertal to high levels. The mean bone age advancement was 2.3 ± 1.9 years. Treatment included medroxyprogesterone acetate, tamoxifen, aromatase inhibitors, and ketoconazole, individually or in combination for 5 ± 2.14 years, with partial or complete control of puberty. Secondary central precocious puberty was diagnosed in 57.1% (8/14) of the patients. Fibrous dysplasia was diagnosed in 11 patients and managed with bisphosphonates for those with bone pain. The mean adult height was 155.1 ± 8.7 cm (-1.17 SDS) in 10 patients. Menarche occurred at a mean age of 12.2 ± 1.04 years, 70% reported regular menstrual cycles and only one female desired pregnancy. Genetic diagnosis was established in 52.9% (9/17) of the patients. Conclusion: Medical treatment of PPP was effective in girls with MAS and led to preservation of adult height potential, and reproductive function was normal when patients reached adulthoodhttp://www.scielo.br/scielo.php?script=sci_arttext&pid=S2359-39972025000201109&lng=en&tlng=enMcCune-Albright syndromeprecocious pubertyaromatase inhibitorstamoxifendigital droplet PCR
spellingShingle Aline Guimarães Faria
Luciana R. Montenegro
Alexander Augusto Lima Jorge
Regina Matsunaga Martin
Maria Candida Barisson Villares Fragoso
Flavia R. Tinano
Carlos E. Seraphim
Ana Pinheiro Machado Canton
Larissa G. Gomes
Gabriel A. Martos-Moreno
Irene Tarjuelo García
Atilano Carcavilla
Mireia Tirado-Capistros
Nadja Cristhina Souza-Pinto
Jesús Argente
Ana Claudia Latronico
Berenice Bilharinho Mendonca
Vinicius Nahime Brito
Peripheral precocious puberty in girls with McCune-Albright syndrome: a case series
Archives of Endocrinology and Metabolism
McCune-Albright syndrome
precocious puberty
aromatase inhibitors
tamoxifen
digital droplet PCR
title Peripheral precocious puberty in girls with McCune-Albright syndrome: a case series
title_full Peripheral precocious puberty in girls with McCune-Albright syndrome: a case series
title_fullStr Peripheral precocious puberty in girls with McCune-Albright syndrome: a case series
title_full_unstemmed Peripheral precocious puberty in girls with McCune-Albright syndrome: a case series
title_short Peripheral precocious puberty in girls with McCune-Albright syndrome: a case series
title_sort peripheral precocious puberty in girls with mccune albright syndrome a case series
topic McCune-Albright syndrome
precocious puberty
aromatase inhibitors
tamoxifen
digital droplet PCR
url http://www.scielo.br/scielo.php?script=sci_arttext&pid=S2359-39972025000201109&lng=en&tlng=en
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