Developing a best-practice guide to support care for Aboriginal and Torres Strait Islander peoples living with cognitive impairment and dementia: Prioritising inclusivity, consensus-building and cultural values
Objectives: Dementia is a global health issue. Although best-practice guidelines for detection and management of dementia exist for primary care, there is a pressing need for culturally appropriate resources to support care for Aboriginal and Torres Strait Islander people living with cognitive impai...
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| Format: | Article |
| Language: | English |
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Elsevier
2025-06-01
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| Series: | SSM - Mental Health |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2666560325000325 |
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| author | Jo-anne Hughson Mary Belfrage Harold Douglas Dawn Bessarab Venessa Curnow Roslyn Malay Dallas McKeown Robyn Smith Dina LoGiudice |
| author_facet | Jo-anne Hughson Mary Belfrage Harold Douglas Dawn Bessarab Venessa Curnow Roslyn Malay Dallas McKeown Robyn Smith Dina LoGiudice |
| author_sort | Jo-anne Hughson |
| collection | DOAJ |
| description | Objectives: Dementia is a global health issue. Although best-practice guidelines for detection and management of dementia exist for primary care, there is a pressing need for culturally appropriate resources to support care for Aboriginal and Torres Strait Islander people living with cognitive impairment and dementia. Methods: A best-practice guide (BPG) for cognitive and dementia care for Aboriginal and Torres Strait Islander people attending primary care was developed incorporating evidence-based clinical care recommendations and cultural dimensions. Adopting research approaches characterised by inclusivity and collaboration, guide development included: (i) a planning phase with stakeholders; (ii) literature review; (iii) a draft development phase; (iv) a modified Delphi (e-Delphi) process; (v) in-depth cultural review by the project's Indigenous Reference Group and health service staff; (vi) and final clinical review. Results: Stakeholders wanted a BPG that was: comprehensive, easy to follow and practical; incorporated cultural considerations and; took account of the ongoing effects of colonisation. A two-part e-Delphi process, completed by 39 and 31 purposively selected participants respectively, reached consensus on: guide aims; cultural principles for inclusion; detection processes; future planning; referral to specialist cognition and palliative care services. Cultural review resulted in further integration of cultural principles and recommended development of additional resources. Further minor modifications were made during the final clinical review for peak body endorsement. Discussion: A rigorous development and review process has resulted in a culturally adapted resource health professionals can use to guide care with Aboriginal and Torres Strait Islander patients at risk of or experiencing cognitive impairment or dementia. |
| format | Article |
| id | doaj-art-0dc15dd38ed34c92a4dbd0217737d451 |
| institution | Kabale University |
| issn | 2666-5603 |
| language | English |
| publishDate | 2025-06-01 |
| publisher | Elsevier |
| record_format | Article |
| series | SSM - Mental Health |
| spelling | doaj-art-0dc15dd38ed34c92a4dbd0217737d4512025-08-20T03:45:08ZengElsevierSSM - Mental Health2666-56032025-06-01710042010.1016/j.ssmmh.2025.100420Developing a best-practice guide to support care for Aboriginal and Torres Strait Islander peoples living with cognitive impairment and dementia: Prioritising inclusivity, consensus-building and cultural valuesJo-anne Hughson0Mary Belfrage1Harold Douglas2Dawn Bessarab3Venessa Curnow4Roslyn Malay5Dallas McKeown6Robyn Smith7Dina LoGiudice8The University of Melbourne, Department of Medicine – Royal Melbourne Hospital, Royal Park Campus, Administration Building 21, 34 -54 Poplar Road, Melbourne, Victoria, 3052, Australia; Corresponding author.The University of Melbourne, Department of Medicine – Royal Melbourne Hospital, Royal Park Campus, Administration Building 21, 34 -54 Poplar Road, Melbourne, Victoria, 3052, AustraliaThe University of Melbourne, Department of Medicine – Royal Melbourne Hospital, Royal Park Campus, Administration Building 21, 34 -54 Poplar Road, Melbourne, Victoria, 3052, AustraliaWestern Australian Centre for Heath and Ageing, Medical School, The University of Western Australia, 35 Stirling Highway, Perth, 6009, WA, Australia; Centre for Aboriginal Medical and Dental Health, Medical School, The University of Western Australia, Perth, 6009, AustraliaQueensland Health, Aboriginal and Torres Strait Islander Health, Torres and Cape Hospital and Health Service, PO Box 101, Cooktown, Queensland, 4895, AustraliaWestern Australian Centre for Heath and Ageing, Medical School, The University of Western Australia, 35 Stirling Highway, Perth, 6009, WA, AustraliaCRANAplus Inc., PO Box 7410, Cairns, Queensland, 4870, AustraliaThe University of Melbourne, Department of Medicine – Royal Melbourne Hospital, Royal Park Campus, Administration Building 21, 34 -54 Poplar Road, Melbourne, Victoria, 3052, AustraliaThe University of Melbourne, Department of Medicine – Royal Melbourne Hospital, Royal Park Campus, Administration Building 21, 34 -54 Poplar Road, Melbourne, Victoria, 3052, Australia; Department of Aged Care, Royal Melbourne Hospital, Melbourne, AustraliaObjectives: Dementia is a global health issue. Although best-practice guidelines for detection and management of dementia exist for primary care, there is a pressing need for culturally appropriate resources to support care for Aboriginal and Torres Strait Islander people living with cognitive impairment and dementia. Methods: A best-practice guide (BPG) for cognitive and dementia care for Aboriginal and Torres Strait Islander people attending primary care was developed incorporating evidence-based clinical care recommendations and cultural dimensions. Adopting research approaches characterised by inclusivity and collaboration, guide development included: (i) a planning phase with stakeholders; (ii) literature review; (iii) a draft development phase; (iv) a modified Delphi (e-Delphi) process; (v) in-depth cultural review by the project's Indigenous Reference Group and health service staff; (vi) and final clinical review. Results: Stakeholders wanted a BPG that was: comprehensive, easy to follow and practical; incorporated cultural considerations and; took account of the ongoing effects of colonisation. A two-part e-Delphi process, completed by 39 and 31 purposively selected participants respectively, reached consensus on: guide aims; cultural principles for inclusion; detection processes; future planning; referral to specialist cognition and palliative care services. Cultural review resulted in further integration of cultural principles and recommended development of additional resources. Further minor modifications were made during the final clinical review for peak body endorsement. Discussion: A rigorous development and review process has resulted in a culturally adapted resource health professionals can use to guide care with Aboriginal and Torres Strait Islander patients at risk of or experiencing cognitive impairment or dementia.http://www.sciencedirect.com/science/article/pii/S2666560325000325DementiaAboriginalTorres strait islanderDelphi processGuidelines development |
| spellingShingle | Jo-anne Hughson Mary Belfrage Harold Douglas Dawn Bessarab Venessa Curnow Roslyn Malay Dallas McKeown Robyn Smith Dina LoGiudice Developing a best-practice guide to support care for Aboriginal and Torres Strait Islander peoples living with cognitive impairment and dementia: Prioritising inclusivity, consensus-building and cultural values SSM - Mental Health Dementia Aboriginal Torres strait islander Delphi process Guidelines development |
| title | Developing a best-practice guide to support care for Aboriginal and Torres Strait Islander peoples living with cognitive impairment and dementia: Prioritising inclusivity, consensus-building and cultural values |
| title_full | Developing a best-practice guide to support care for Aboriginal and Torres Strait Islander peoples living with cognitive impairment and dementia: Prioritising inclusivity, consensus-building and cultural values |
| title_fullStr | Developing a best-practice guide to support care for Aboriginal and Torres Strait Islander peoples living with cognitive impairment and dementia: Prioritising inclusivity, consensus-building and cultural values |
| title_full_unstemmed | Developing a best-practice guide to support care for Aboriginal and Torres Strait Islander peoples living with cognitive impairment and dementia: Prioritising inclusivity, consensus-building and cultural values |
| title_short | Developing a best-practice guide to support care for Aboriginal and Torres Strait Islander peoples living with cognitive impairment and dementia: Prioritising inclusivity, consensus-building and cultural values |
| title_sort | developing a best practice guide to support care for aboriginal and torres strait islander peoples living with cognitive impairment and dementia prioritising inclusivity consensus building and cultural values |
| topic | Dementia Aboriginal Torres strait islander Delphi process Guidelines development |
| url | http://www.sciencedirect.com/science/article/pii/S2666560325000325 |
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