Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital

Introduction Shared decision-making (SDM) is not yet widely used when making decisions in German hospitals. Making SDM a reality is a complex task. It involves training healthcare professionals in SDM communication and enabling patients to actively participate in communication, in addition to provid...

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Main Authors: Leonie Sundmacher, Anna Novelli, Marion Danner, Friedemann Geiger, Kai Wehkamp, Jens Ulrich Rueffer, Christine Kuch, Tove Skjelbakken, Anne Rummer, Marie Debrouwere, Fueloep Scheibler
Format: Article
Language:English
Published: BMJ Publishing Group 2020-10-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/10/10/e037575.full
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author Leonie Sundmacher
Anna Novelli
Marion Danner
Friedemann Geiger
Kai Wehkamp
Jens Ulrich Rueffer
Christine Kuch
Tove Skjelbakken
Anne Rummer
Marie Debrouwere
Fueloep Scheibler
author_facet Leonie Sundmacher
Anna Novelli
Marion Danner
Friedemann Geiger
Kai Wehkamp
Jens Ulrich Rueffer
Christine Kuch
Tove Skjelbakken
Anne Rummer
Marie Debrouwere
Fueloep Scheibler
author_sort Leonie Sundmacher
collection DOAJ
description Introduction Shared decision-making (SDM) is not yet widely used when making decisions in German hospitals. Making SDM a reality is a complex task. It involves training healthcare professionals in SDM communication and enabling patients to actively participate in communication, in addition to providing sound, easy to understand information on treatment alternatives in the form of evidence-based patient decision aids (EbPDAs). This project funded by the German Innovation Fund aims at designing, implementing and evaluating a multicomponent, large-scale and integrative SDM programme—called SHARE TO CARE (S2C)—at all clinical departments of a University Hospital Campus in Northern Germany within a 4-year time period.Methods and analysis S2C tackles the aforementioned components of SDM: (1) training physicians in SDM communication, (2) activating and empowering patients, (3) developing EbPDAs in the most common/relevant diseases and (4) training other healthcare professionals in SDM coaching. S2C is designed together with patients and providers. The physicians’ training programme entails an online and an in situ training module. The decision coach training is based on a similar but less comprehensive approach. The development of online EbPDAs follows the International Patient Decision Aid Standards and includes written, graphical and video-based information. Validated outcomes of SDM implementation are measured in a preintervention and postintervention evaluation design. Process evaluation accompanies programme implementation. Health economic impact of the intervention is investigated using a propensity-score-matched approach based on potentially preference-sensitive hospital decisions.Ethics and dissemination Ethics committee review approval has been obtained from Medical Ethics Committee of the Medical Faculty of the Christian-Albrechts-University Kiel. Project information and results will be disseminated at conferences, on project-hosted websites at University Hospital Medical Center Schleswig Holstein and by S2C as well as in peer-reviewed and professional journals.
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spelling doaj-art-0db753bfa84e446d8423d7d7cd7478f52025-08-20T02:33:04ZengBMJ Publishing GroupBMJ Open2044-60552020-10-01101010.1136/bmjopen-2020-037575Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University HospitalLeonie Sundmacher0Anna Novelli1Marion Danner2Friedemann Geiger3Kai Wehkamp4Jens Ulrich Rueffer5Christine Kuch6Tove Skjelbakken7Anne Rummer8Marie Debrouwere9Fueloep Scheibler102 Chair of Health Economics, Technical University of Munich, Munich, GermanyDepartment of Health Services Management, Ludwig-Maximilians-University Munich, Munich, Germany5 DARUM Marion Danner und Anne Rummer GbR, Cologne, Germany1National Competency Center for Shared Decision Making, Kiel, Germany4 Department of Internal Medicine I, University Medical Center Schleswig-Holstein, Kiel, GermanySHARE TO CARE, Patientenzentrierte Kommunikation GmbH, Cologne, GermanySHARE TO CARE Team, University Medical Center Schleswig-Holstein Campus Kiel, Kiel, GermanyUniversitetet i Tromso Helsevitenskapelige fakultet Helsefak, Tromso, NorwaySHARE TO CARE Team, University Medical Center Schleswig-Holstein Campus Kiel, Kiel, Germany6 National Competency Center for Shared Decision Making, University Hospital Schleswig Holstein, Kiel, GermanySHARE TO CARE Team, University Medical Center Schleswig-Holstein Campus Kiel, Kiel, GermanyIntroduction Shared decision-making (SDM) is not yet widely used when making decisions in German hospitals. Making SDM a reality is a complex task. It involves training healthcare professionals in SDM communication and enabling patients to actively participate in communication, in addition to providing sound, easy to understand information on treatment alternatives in the form of evidence-based patient decision aids (EbPDAs). This project funded by the German Innovation Fund aims at designing, implementing and evaluating a multicomponent, large-scale and integrative SDM programme—called SHARE TO CARE (S2C)—at all clinical departments of a University Hospital Campus in Northern Germany within a 4-year time period.Methods and analysis S2C tackles the aforementioned components of SDM: (1) training physicians in SDM communication, (2) activating and empowering patients, (3) developing EbPDAs in the most common/relevant diseases and (4) training other healthcare professionals in SDM coaching. S2C is designed together with patients and providers. The physicians’ training programme entails an online and an in situ training module. The decision coach training is based on a similar but less comprehensive approach. The development of online EbPDAs follows the International Patient Decision Aid Standards and includes written, graphical and video-based information. Validated outcomes of SDM implementation are measured in a preintervention and postintervention evaluation design. Process evaluation accompanies programme implementation. Health economic impact of the intervention is investigated using a propensity-score-matched approach based on potentially preference-sensitive hospital decisions.Ethics and dissemination Ethics committee review approval has been obtained from Medical Ethics Committee of the Medical Faculty of the Christian-Albrechts-University Kiel. Project information and results will be disseminated at conferences, on project-hosted websites at University Hospital Medical Center Schleswig Holstein and by S2C as well as in peer-reviewed and professional journals.https://bmjopen.bmj.com/content/10/10/e037575.full
spellingShingle Leonie Sundmacher
Anna Novelli
Marion Danner
Friedemann Geiger
Kai Wehkamp
Jens Ulrich Rueffer
Christine Kuch
Tove Skjelbakken
Anne Rummer
Marie Debrouwere
Fueloep Scheibler
Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital
BMJ Open
title Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital
title_full Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital
title_fullStr Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital
title_full_unstemmed Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital
title_short Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital
title_sort making shared decision making sdm a reality protocol of a large scale long term sdm implementation programme at a northern german university hospital
url https://bmjopen.bmj.com/content/10/10/e037575.full
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