Decision Making about Risk of Infection by Young Adults with CF

Young people with cystic fibrosis (CF) are asked to avoid a number of environments associated with increased infection risk, but in practice they need to balance this with competing priorities such as building and sustaining relationships with friends and family. This study explored the process by w...

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Main Authors: Lisa Reynolds, Gary Latchford, Alistair J. A. Duff, Miles Denton, Tim Lee, Daniel Peckham
Format: Article
Language:English
Published: Wiley 2013-01-01
Series:Pulmonary Medicine
Online Access:http://dx.doi.org/10.1155/2013/658638
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author Lisa Reynolds
Gary Latchford
Alistair J. A. Duff
Miles Denton
Tim Lee
Daniel Peckham
author_facet Lisa Reynolds
Gary Latchford
Alistair J. A. Duff
Miles Denton
Tim Lee
Daniel Peckham
author_sort Lisa Reynolds
collection DOAJ
description Young people with cystic fibrosis (CF) are asked to avoid a number of environments associated with increased infection risk, but in practice they need to balance this with competing priorities such as building and sustaining relationships with friends and family. This study explored the process by which young people make these decisions. Mixed methods were used: a vignette study presenting choices around engaging in activities involving a degree of infection risk and a thematic analysis of participant's accounts of their decision making. The eight participants chose to engage in high risk behaviours in 59% of the choices. All participants chose to engage in at least one risky behavior, though this was less likely when the risk was significant. Thematic analysis revealed large areas of misunderstanding and lack of knowledge, leading to some potentially worrying misconceptions about the nature of infections and risk. Young people with CF are not currently making informed decisions around activities that involve increased risk of infection, and there is an urgent need for CF teams to address this in information provision.
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spelling doaj-art-0adee8a5149b459f8f6a3bfc5d1fe09a2025-08-20T03:17:01ZengWileyPulmonary Medicine2090-18362090-18442013-01-01201310.1155/2013/658638658638Decision Making about Risk of Infection by Young Adults with CFLisa Reynolds0Gary Latchford1Alistair J. A. Duff2Miles Denton3Tim Lee4Daniel Peckham5Leeds Institute of Health Sciences, University of Leeds, Leeds LS2 9LJ, UKLeeds Institute of Health Sciences, University of Leeds, Leeds LS2 9LJ, UKDepartment of Clinical and Health Psychology, Leeds Teaching Hospitals NHS Trust, Leeds LS9 7TF, UKMicrobiology, Leeds Teaching Hospitals NHS Trust, Leeds LS9 7TF, UKPaediatric Cystic Fibrosis Centre, Leeds Teaching Hospitals NHS Trust, Leeds LS1 3EX, UKAdult Cystic Fibrosis Unit, Leeds Teaching Hospitals NHS Trust, Leeds LS9 7TF, UKYoung people with cystic fibrosis (CF) are asked to avoid a number of environments associated with increased infection risk, but in practice they need to balance this with competing priorities such as building and sustaining relationships with friends and family. This study explored the process by which young people make these decisions. Mixed methods were used: a vignette study presenting choices around engaging in activities involving a degree of infection risk and a thematic analysis of participant's accounts of their decision making. The eight participants chose to engage in high risk behaviours in 59% of the choices. All participants chose to engage in at least one risky behavior, though this was less likely when the risk was significant. Thematic analysis revealed large areas of misunderstanding and lack of knowledge, leading to some potentially worrying misconceptions about the nature of infections and risk. Young people with CF are not currently making informed decisions around activities that involve increased risk of infection, and there is an urgent need for CF teams to address this in information provision.http://dx.doi.org/10.1155/2013/658638
spellingShingle Lisa Reynolds
Gary Latchford
Alistair J. A. Duff
Miles Denton
Tim Lee
Daniel Peckham
Decision Making about Risk of Infection by Young Adults with CF
Pulmonary Medicine
title Decision Making about Risk of Infection by Young Adults with CF
title_full Decision Making about Risk of Infection by Young Adults with CF
title_fullStr Decision Making about Risk of Infection by Young Adults with CF
title_full_unstemmed Decision Making about Risk of Infection by Young Adults with CF
title_short Decision Making about Risk of Infection by Young Adults with CF
title_sort decision making about risk of infection by young adults with cf
url http://dx.doi.org/10.1155/2013/658638
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