A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndrome
Objectives To gain a deeper understanding of the real experiences and needs of the patients of Peutz-Jeghers syndrome (PJS) with fertility concerns.Design A qualitative study.Methods Phenomenological research and Semi-structured method were conducted with the patients of PJS (N = 16), and the interv...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2024-12-01
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| Series: | Journal of Psychosomatic Obstetrics and Gynecology |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/0167482X.2024.2405615 |
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| author | Mengxia Pan Beilei Ye Huajuan Shen Jiyong Jin Qiong Zhang |
| author_facet | Mengxia Pan Beilei Ye Huajuan Shen Jiyong Jin Qiong Zhang |
| author_sort | Mengxia Pan |
| collection | DOAJ |
| description | Objectives To gain a deeper understanding of the real experiences and needs of the patients of Peutz-Jeghers syndrome (PJS) with fertility concerns.Design A qualitative study.Methods Phenomenological research and Semi-structured method were conducted with the patients of PJS (N = 16), and the interview data were analyzed using inductive content analysis strategies.Results 16 patients were interviewed, including 13 women and 3 men partners. We identified 5 themes, including: (i) Heritability of disease, (ii) Potential risks of reproduction; (iii) The difficulties in raising children; (iv) family and social support. (V) Need support from multiple sources.Conclusion The findings of this study demonstrate that patients with Peutz-Jeghers syndrome (PJS) who are of childbearing age experience various reproductive concerns and other manifestations. Therefore, it is essential to offer individualized psychological interventions for PJS patients at different psychological stages, with the support of healthcare professionals, family, and social networks. |
| format | Article |
| id | doaj-art-0a69e6403cac44ef9717f9a414bf0da3 |
| institution | DOAJ |
| issn | 0167-482X 1743-8942 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Journal of Psychosomatic Obstetrics and Gynecology |
| spelling | doaj-art-0a69e6403cac44ef9717f9a414bf0da32025-08-20T02:50:55ZengTaylor & Francis GroupJournal of Psychosomatic Obstetrics and Gynecology0167-482X1743-89422024-12-0145110.1080/0167482X.2024.2405615A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndromeMengxia Pan0Beilei Ye1Huajuan Shen2Jiyong Jin3Qiong Zhang4Center for General practice Medicine, Department of Gastroenterology, Zhejiang Provincial People’s Hospital (Affiliated People’s Hospital), Hangzhou Medical College, Hangzhou, ChinaCenter for General practice Medicine, Department of Gastroenterology, Zhejiang Provincial People’s Hospital (Affiliated People’s Hospital), Hangzhou Medical College, Hangzhou, ChinaDepartment of Nursing, Zhejiang Provincial People’s Hospital (Affiliated People’s Hospital), Hangzhou Medical College, Hangzhou, ChinaDepartment of Nursing, Zhejiang Provincial People’s Hospital (Affiliated People’s Hospital), Hangzhou Medical College, Hangzhou, ChinaDepartment of Nursing, Zhejiang Provincial People’s Hospital (Affiliated People’s Hospital), Hangzhou Medical College, Hangzhou, ChinaObjectives To gain a deeper understanding of the real experiences and needs of the patients of Peutz-Jeghers syndrome (PJS) with fertility concerns.Design A qualitative study.Methods Phenomenological research and Semi-structured method were conducted with the patients of PJS (N = 16), and the interview data were analyzed using inductive content analysis strategies.Results 16 patients were interviewed, including 13 women and 3 men partners. We identified 5 themes, including: (i) Heritability of disease, (ii) Potential risks of reproduction; (iii) The difficulties in raising children; (iv) family and social support. (V) Need support from multiple sources.Conclusion The findings of this study demonstrate that patients with Peutz-Jeghers syndrome (PJS) who are of childbearing age experience various reproductive concerns and other manifestations. Therefore, it is essential to offer individualized psychological interventions for PJS patients at different psychological stages, with the support of healthcare professionals, family, and social networks.https://www.tandfonline.com/doi/10.1080/0167482X.2024.2405615Peutz-Jeghers syndromereproductive concernsqualitative researchgenetic counselingfertility preservation |
| spellingShingle | Mengxia Pan Beilei Ye Huajuan Shen Jiyong Jin Qiong Zhang A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndrome Journal of Psychosomatic Obstetrics and Gynecology Peutz-Jeghers syndrome reproductive concerns qualitative research genetic counseling fertility preservation |
| title | A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndrome |
| title_full | A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndrome |
| title_fullStr | A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndrome |
| title_full_unstemmed | A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndrome |
| title_short | A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndrome |
| title_sort | qualitative research on reproductive concerns of the patients with peutz jeghers syndrome |
| topic | Peutz-Jeghers syndrome reproductive concerns qualitative research genetic counseling fertility preservation |
| url | https://www.tandfonline.com/doi/10.1080/0167482X.2024.2405615 |
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