Parental Reports of Stigma Associated with Child’s Disorder of Sex Development
Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical. DSD-associated stigma is purported to threaten positive psychosocial adaptation. Parental perceptions of DSD-related stigma were assessed in 154 parents of 107 childre...
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| Format: | Article |
| Language: | English |
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Wiley
2015-01-01
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| Series: | International Journal of Endocrinology |
| Online Access: | http://dx.doi.org/10.1155/2015/980121 |
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| author | Aimee M. Rolston Melissa Gardner Eric Vilain David E. Sandberg |
| author_facet | Aimee M. Rolston Melissa Gardner Eric Vilain David E. Sandberg |
| author_sort | Aimee M. Rolston |
| collection | DOAJ |
| description | Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical. DSD-associated stigma is purported to threaten positive psychosocial adaptation. Parental perceptions of DSD-related stigma were assessed in 154 parents of 107 children (newborn–17 years) questionnaire comprising two scales, child-focused and parent-focused, and three subscales, perceived stigmatization, future worries, and feelings about the child’s condition. Medical chart excerpts identified diagnoses and clinical management details. Stigma scale scores were generally low. Parents of children with DSD reported less stigma than parents of children with epilepsy; however, a notable proportion rated individual items in the moderate to high range. Stigma was unrelated to child’s age or the number of DSD-related surgeries. Child-focused stigma scores exceeded parent-focused stigma and mothers reported more stigma than fathers, with a moderate level of agreement. Within 46,XY DSD, reported stigma was higher for children reared as girls. In conclusion, in this first quantitative study of ongoing experiences, DSD-related stigma in childhood and adolescence, while limited in the aggregate, is reported at moderate to high levels in specific areas. Because stigma threatens positive psychosocial adaptation, systematic screening for these concerns should be considered and, when reported, targeted for psychoeducational counseling. |
| format | Article |
| id | doaj-art-094b65623eef48ba9e1a18dc04efdc7f |
| institution | Kabale University |
| issn | 1687-8337 1687-8345 |
| language | English |
| publishDate | 2015-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | International Journal of Endocrinology |
| spelling | doaj-art-094b65623eef48ba9e1a18dc04efdc7f2025-08-20T03:55:28ZengWileyInternational Journal of Endocrinology1687-83371687-83452015-01-01201510.1155/2015/980121980121Parental Reports of Stigma Associated with Child’s Disorder of Sex DevelopmentAimee M. Rolston0Melissa Gardner1Eric Vilain2David E. Sandberg3Department of Pediatrics and Communicable Diseases, University of Michigan, Ann Arbor, MI 48109-5456, USADepartment of Pediatrics and Communicable Diseases, University of Michigan, Ann Arbor, MI 48109-5456, USADepartment of Human Genetics, David Geffen School of Medicine at UCLA, Los Angeles, CA 90095-7088, USADepartment of Pediatrics and Communicable Diseases, University of Michigan, Ann Arbor, MI 48109-5456, USADisorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical. DSD-associated stigma is purported to threaten positive psychosocial adaptation. Parental perceptions of DSD-related stigma were assessed in 154 parents of 107 children (newborn–17 years) questionnaire comprising two scales, child-focused and parent-focused, and three subscales, perceived stigmatization, future worries, and feelings about the child’s condition. Medical chart excerpts identified diagnoses and clinical management details. Stigma scale scores were generally low. Parents of children with DSD reported less stigma than parents of children with epilepsy; however, a notable proportion rated individual items in the moderate to high range. Stigma was unrelated to child’s age or the number of DSD-related surgeries. Child-focused stigma scores exceeded parent-focused stigma and mothers reported more stigma than fathers, with a moderate level of agreement. Within 46,XY DSD, reported stigma was higher for children reared as girls. In conclusion, in this first quantitative study of ongoing experiences, DSD-related stigma in childhood and adolescence, while limited in the aggregate, is reported at moderate to high levels in specific areas. Because stigma threatens positive psychosocial adaptation, systematic screening for these concerns should be considered and, when reported, targeted for psychoeducational counseling.http://dx.doi.org/10.1155/2015/980121 |
| spellingShingle | Aimee M. Rolston Melissa Gardner Eric Vilain David E. Sandberg Parental Reports of Stigma Associated with Child’s Disorder of Sex Development International Journal of Endocrinology |
| title | Parental Reports of Stigma Associated with Child’s Disorder of Sex Development |
| title_full | Parental Reports of Stigma Associated with Child’s Disorder of Sex Development |
| title_fullStr | Parental Reports of Stigma Associated with Child’s Disorder of Sex Development |
| title_full_unstemmed | Parental Reports of Stigma Associated with Child’s Disorder of Sex Development |
| title_short | Parental Reports of Stigma Associated with Child’s Disorder of Sex Development |
| title_sort | parental reports of stigma associated with child s disorder of sex development |
| url | http://dx.doi.org/10.1155/2015/980121 |
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