The effect of nurse-led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis: the IDEAL HD project

Abstract Background Patients with end-stage kidney disease suffer from uncertainty in illness and low activation. Individualized education is a new approach in which education is provided on the basis of the patient’s needs and preferences. This study aims to assess the influence of nurse-led indivi...

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Main Authors: Seyyede Leila Sajjadi, Mansour Ghafourifard, Hamid Tayebi Khosroshahi
Format: Article
Language:English
Published: BMC 2025-06-01
Series:Renal Replacement Therapy
Subjects:
Online Access:https://doi.org/10.1186/s41100-025-00641-8
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author Seyyede Leila Sajjadi
Mansour Ghafourifard
Hamid Tayebi Khosroshahi
author_facet Seyyede Leila Sajjadi
Mansour Ghafourifard
Hamid Tayebi Khosroshahi
author_sort Seyyede Leila Sajjadi
collection DOAJ
description Abstract Background Patients with end-stage kidney disease suffer from uncertainty in illness and low activation. Individualized education is a new approach in which education is provided on the basis of the patient’s needs and preferences. This study aims to assess the influence of nurse-led individualized education on uncertainty in illness and activation among patients undergoing hemodialysis (HD). Methods In this randomized clinical trial, a total of 102 HD patients were randomly assigned to the intervention or control groups. Patients in the intervention group (n = 51) received individualized education on the basis of their learning needs. The control group (n = 51) received routine education (the printed educational brochures). The patients’ uncertainty in illness and the patient activation were assessed before the intervention, after the intervention, and 3 months after the last session of individualized education. Data were analyzed using SPSS software (v.26). A P-value less than 0.05 was considered significant. Results The results showed that the mean scores of uncertainty in illness and activation were not significantly different between the two groups before the intervention (P = 0.56, P = 0.46). However, the mean total score of uncertainty in illness in the intervention group were lower than the control group immediately and 3 months after the intervention (P < 0.001). In addition, a significant increase in patient activation was found in the intervention group compared with control group (P < 0.001). Conclusions It is recommended to make changes in patient education strategies and utilize effective educational methods by considering each patient’s needs and preferences. Moreover, it is recommended to use individualized education at the early stage of chronic kidney disease (CKD). Trial registration Iranian Registry of Clinical Trial, IRCT20221031056352N1.
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spelling doaj-art-0911e50cbade41609c8e04ce3fe326ca2025-08-20T03:27:18ZengBMCRenal Replacement Therapy2059-13812025-06-0111111010.1186/s41100-025-00641-8The effect of nurse-led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis: the IDEAL HD projectSeyyede Leila Sajjadi0Mansour Ghafourifard1Hamid Tayebi Khosroshahi2Student Research Committee, Tabriz University of Medical SciencesDepartment of Medical Surgical Nursing, Faculty of Nursing and Midwifery, Tabriz University of Medical SciencesDepartment of Nephrology, Tabriz University of Medical SciencesAbstract Background Patients with end-stage kidney disease suffer from uncertainty in illness and low activation. Individualized education is a new approach in which education is provided on the basis of the patient’s needs and preferences. This study aims to assess the influence of nurse-led individualized education on uncertainty in illness and activation among patients undergoing hemodialysis (HD). Methods In this randomized clinical trial, a total of 102 HD patients were randomly assigned to the intervention or control groups. Patients in the intervention group (n = 51) received individualized education on the basis of their learning needs. The control group (n = 51) received routine education (the printed educational brochures). The patients’ uncertainty in illness and the patient activation were assessed before the intervention, after the intervention, and 3 months after the last session of individualized education. Data were analyzed using SPSS software (v.26). A P-value less than 0.05 was considered significant. Results The results showed that the mean scores of uncertainty in illness and activation were not significantly different between the two groups before the intervention (P = 0.56, P = 0.46). However, the mean total score of uncertainty in illness in the intervention group were lower than the control group immediately and 3 months after the intervention (P < 0.001). In addition, a significant increase in patient activation was found in the intervention group compared with control group (P < 0.001). Conclusions It is recommended to make changes in patient education strategies and utilize effective educational methods by considering each patient’s needs and preferences. Moreover, it is recommended to use individualized education at the early stage of chronic kidney disease (CKD). Trial registration Iranian Registry of Clinical Trial, IRCT20221031056352N1.https://doi.org/10.1186/s41100-025-00641-8Individualized educationUncertainty in illnessPatient activationHemodialysisRandomized clinical trial
spellingShingle Seyyede Leila Sajjadi
Mansour Ghafourifard
Hamid Tayebi Khosroshahi
The effect of nurse-led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis: the IDEAL HD project
Renal Replacement Therapy
Individualized education
Uncertainty in illness
Patient activation
Hemodialysis
Randomized clinical trial
title The effect of nurse-led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis: the IDEAL HD project
title_full The effect of nurse-led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis: the IDEAL HD project
title_fullStr The effect of nurse-led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis: the IDEAL HD project
title_full_unstemmed The effect of nurse-led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis: the IDEAL HD project
title_short The effect of nurse-led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis: the IDEAL HD project
title_sort effect of nurse led individualized education on uncertainty in illness and patient activation in patients undergoing hemodialysis the ideal hd project
topic Individualized education
Uncertainty in illness
Patient activation
Hemodialysis
Randomized clinical trial
url https://doi.org/10.1186/s41100-025-00641-8
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