Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review

Aim To systematically review and descriptively synthesise the costs associated with any health and/or social care services provided to children with a life-limiting condition, in their last year of life.Methods Systematic review using MEDLINE, EMBASE, CENTRAL Cochrane Library, CINAHL and other speci...

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Main Authors: Nathan Bray, Jane Noyes, Louise Prendergast, Ellie Crane
Format: Article
Language:English
Published: BMJ Publishing Group 2025-07-01
Series:BMJ Paediatrics Open
Online Access:https://bmjpaedsopen.bmj.com/content/9/1/e003526.full
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author Nathan Bray
Jane Noyes
Louise Prendergast
Ellie Crane
author_facet Nathan Bray
Jane Noyes
Louise Prendergast
Ellie Crane
author_sort Nathan Bray
collection DOAJ
description Aim To systematically review and descriptively synthesise the costs associated with any health and/or social care services provided to children with a life-limiting condition, in their last year of life.Methods Systematic review using MEDLINE, EMBASE, CENTRAL Cochrane Library, CINAHL and other specialist databases to identify articles published between 2004 and 2024. Duplicates were removed and two authors screened the articles and abstracts independently. Full-text articles were assessed for eligibility, with quality assessment conducted using the Drummond checklist. The findings were exported into tables and summarised narratively. Costs from each study were calculated per person per month and inflated to 2024 US dollars.Results 20 records were eligible for final inclusion. Services reported were varied as were approaches to estimating costs. In general, younger children required more intensive and higher cost care. Costs increase in the final months of life, and specialist paediatric palliative care interventions were associated with overall lower costs through reductions in hospital admissions and length of stay.Conclusions It was not possible to present a reliable robust estimate of the economic costs of services and resources due to limited and heterogenic data. Further research is needed to identify the full range of resources, and services associated with caring for children with life-limiting conditions in their last year of life, to support healthcare planning and resource allocation.
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spelling doaj-art-0770cdb490464f38b3efd3e214581de12025-08-20T03:50:53ZengBMJ Publishing GroupBMJ Paediatrics Open2399-97722025-07-019110.1136/bmjpo-2025-003526Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic reviewNathan Bray0Jane Noyes1Louise Prendergast2Ellie Crane33 Centre for Health Economics and Medicines Evaluation, Bangor University, Bangor, UK10 School of Health and Medical Sciences, Bangor University, Fron Heulog, Bangor, UKSchool of Health Sciences, Bangor University, Bangor, Gwynedd, UKSchool of Health Sciences, Bangor University, Bangor, Gwynedd, UKAim To systematically review and descriptively synthesise the costs associated with any health and/or social care services provided to children with a life-limiting condition, in their last year of life.Methods Systematic review using MEDLINE, EMBASE, CENTRAL Cochrane Library, CINAHL and other specialist databases to identify articles published between 2004 and 2024. Duplicates were removed and two authors screened the articles and abstracts independently. Full-text articles were assessed for eligibility, with quality assessment conducted using the Drummond checklist. The findings were exported into tables and summarised narratively. Costs from each study were calculated per person per month and inflated to 2024 US dollars.Results 20 records were eligible for final inclusion. Services reported were varied as were approaches to estimating costs. In general, younger children required more intensive and higher cost care. Costs increase in the final months of life, and specialist paediatric palliative care interventions were associated with overall lower costs through reductions in hospital admissions and length of stay.Conclusions It was not possible to present a reliable robust estimate of the economic costs of services and resources due to limited and heterogenic data. Further research is needed to identify the full range of resources, and services associated with caring for children with life-limiting conditions in their last year of life, to support healthcare planning and resource allocation.https://bmjpaedsopen.bmj.com/content/9/1/e003526.full
spellingShingle Nathan Bray
Jane Noyes
Louise Prendergast
Ellie Crane
Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review
BMJ Paediatrics Open
title Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review
title_full Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review
title_fullStr Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review
title_full_unstemmed Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review
title_short Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review
title_sort economic costs of health and social care for a child with a life limiting condition in their last year of life a systematic review
url https://bmjpaedsopen.bmj.com/content/9/1/e003526.full
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