Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes
Abstract The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living wit...
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| Main Authors: | , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Wiley
2019-01-01
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| Series: | Alzheimer’s & Dementia: Translational Research & Clinical Interventions |
| Subjects: | |
| Online Access: | https://doi.org/10.1016/j.trci.2019.02.008 |
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| _version_ | 1849688498374705152 |
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| author | Joseph E. Gaugler Lisa J. Bain Lauren Mitchell Jessica Finlay Sam Fazio Eric Jutkowitz the Alzheimer's Association Psychosocial Measurement Workgroup Sube Banerjee Kim Butrum Sam Fazio Joseph Gaugler Laura Gitlin Nancy Hodgson Beth Kallmyer Oanh Le Meyer Rebecca Logsdon Katie Maslow Sheryl Zimmerman |
| author_facet | Joseph E. Gaugler Lisa J. Bain Lauren Mitchell Jessica Finlay Sam Fazio Eric Jutkowitz the Alzheimer's Association Psychosocial Measurement Workgroup Sube Banerjee Kim Butrum Sam Fazio Joseph Gaugler Laura Gitlin Nancy Hodgson Beth Kallmyer Oanh Le Meyer Rebecca Logsdon Katie Maslow Sheryl Zimmerman |
| author_sort | Joseph E. Gaugler |
| collection | DOAJ |
| description | Abstract The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living with Alzheimer's dementia and their family caregivers experience the disease process. Specifically, we consider the strengths and weaknesses of alternative perspectives, including person‐centered, strength‐based, and resilience‐focused approaches that may complement and extend the dominant deficit paradigm to reflect the entirety of the dementia experience. Our aim is to encourage innovative methods to measure psychosocial aspects of Alzheimer's dementia and caregiving that have not yet received sufficient attention, including resources (e.g., services and supports) and positive caregiver and care recipient outcomes (e.g., positive mood and adaptation). |
| format | Article |
| id | doaj-art-0732d17bae9547fa85e4a7c8654662c6 |
| institution | DOAJ |
| issn | 2352-8737 |
| language | English |
| publishDate | 2019-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Alzheimer’s & Dementia: Translational Research & Clinical Interventions |
| spelling | doaj-art-0732d17bae9547fa85e4a7c8654662c62025-08-20T03:21:59ZengWileyAlzheimer’s & Dementia: Translational Research & Clinical Interventions2352-87372019-01-015138839710.1016/j.trci.2019.02.008Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomesJoseph E. Gaugler0Lisa J. Bain1Lauren Mitchell2Jessica Finlay3Sam Fazio4Eric Jutkowitz5the Alzheimer's Association Psychosocial Measurement WorkgroupSube BanerjeeKim ButrumSam FazioJoseph GauglerLaura GitlinNancy HodgsonBeth KallmyerOanh Le MeyerRebecca LogsdonKatie MaslowSheryl ZimmermanDivision of Health Policy and ManagementSchool of Public Health, The University of MinnesotaMinneapolisMNUSAThe Alzheimer's AssociationChicagoILUSAMinneapolis VA Healthcare SystemMinneapolisMNUSAInstitute for Social Research, University of MichiganAnn ArborMIUSACare and Support, Alzheimer's AssociationChicagoILUSADepartment of Health Services, Policy & PracticeSchool of Public Health, Brown UniversityProvidenceRIUSAAbstract The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living with Alzheimer's dementia and their family caregivers experience the disease process. Specifically, we consider the strengths and weaknesses of alternative perspectives, including person‐centered, strength‐based, and resilience‐focused approaches that may complement and extend the dominant deficit paradigm to reflect the entirety of the dementia experience. Our aim is to encourage innovative methods to measure psychosocial aspects of Alzheimer's dementia and caregiving that have not yet received sufficient attention, including resources (e.g., services and supports) and positive caregiver and care recipient outcomes (e.g., positive mood and adaptation).https://doi.org/10.1016/j.trci.2019.02.008Alzheimer's diseaseDementiaMeasurementPsychosocialCareWell‐Being |
| spellingShingle | Joseph E. Gaugler Lisa J. Bain Lauren Mitchell Jessica Finlay Sam Fazio Eric Jutkowitz the Alzheimer's Association Psychosocial Measurement Workgroup Sube Banerjee Kim Butrum Sam Fazio Joseph Gaugler Laura Gitlin Nancy Hodgson Beth Kallmyer Oanh Le Meyer Rebecca Logsdon Katie Maslow Sheryl Zimmerman Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes Alzheimer’s & Dementia: Translational Research & Clinical Interventions Alzheimer's disease Dementia Measurement Psychosocial Care Well‐Being |
| title | Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes |
| title_full | Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes |
| title_fullStr | Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes |
| title_full_unstemmed | Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes |
| title_short | Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes |
| title_sort | reconsidering frameworks of alzheimer s dementia when assessing psychosocial outcomes |
| topic | Alzheimer's disease Dementia Measurement Psychosocial Care Well‐Being |
| url | https://doi.org/10.1016/j.trci.2019.02.008 |
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