Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes

Abstract The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living wit...

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Main Authors: Joseph E. Gaugler, Lisa J. Bain, Lauren Mitchell, Jessica Finlay, Sam Fazio, Eric Jutkowitz, the Alzheimer's Association Psychosocial Measurement Workgroup, Sube Banerjee, Kim Butrum, Joseph Gaugler, Laura Gitlin, Nancy Hodgson, Beth Kallmyer, Oanh Le Meyer, Rebecca Logsdon, Katie Maslow, Sheryl Zimmerman
Format: Article
Language:English
Published: Wiley 2019-01-01
Series:Alzheimer’s & Dementia: Translational Research & Clinical Interventions
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Online Access:https://doi.org/10.1016/j.trci.2019.02.008
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Summary:Abstract The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living with Alzheimer's dementia and their family caregivers experience the disease process. Specifically, we consider the strengths and weaknesses of alternative perspectives, including person‐centered, strength‐based, and resilience‐focused approaches that may complement and extend the dominant deficit paradigm to reflect the entirety of the dementia experience. Our aim is to encourage innovative methods to measure psychosocial aspects of Alzheimer's dementia and caregiving that have not yet received sufficient attention, including resources (e.g., services and supports) and positive caregiver and care recipient outcomes (e.g., positive mood and adaptation).
ISSN:2352-8737