From data to impact: The societal contributions of neurological and neurosurgical national registries

The creation of the electronic medical record (EMR) was one of the greatest advancements in medical documentation. It improved the efficiency and practicality of multi-patient research, such as retrospective case series and cohort studies. While EMRs made collecting and sharing patient data feasible...

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Main Authors: Tiffany Eatz, Chase DeLong, Ashley R. Metzler, Neil Patel, Ian A. Ramsay, Sai Sanikommu, Soumya Shrigiri, Ahmed Abdelsalam, Luis Guada, Michael A. Silva, Dileep R. Yavagal, Sebastian Koch, Robert M. Starke
Format: Article
Language:English
Published: Elsevier 2025-12-01
Series:Societal Impacts
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Online Access:http://www.sciencedirect.com/science/article/pii/S294969772500030X
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author Tiffany Eatz
Chase DeLong
Ashley R. Metzler
Neil Patel
Ian A. Ramsay
Sai Sanikommu
Soumya Shrigiri
Ahmed Abdelsalam
Luis Guada
Michael A. Silva
Dileep R. Yavagal
Sebastian Koch
Robert M. Starke
author_facet Tiffany Eatz
Chase DeLong
Ashley R. Metzler
Neil Patel
Ian A. Ramsay
Sai Sanikommu
Soumya Shrigiri
Ahmed Abdelsalam
Luis Guada
Michael A. Silva
Dileep R. Yavagal
Sebastian Koch
Robert M. Starke
author_sort Tiffany Eatz
collection DOAJ
description The creation of the electronic medical record (EMR) was one of the greatest advancements in medical documentation. It improved the efficiency and practicality of multi-patient research, such as retrospective case series and cohort studies. While EMRs made collecting and sharing patient data feasible, the subsequent advent of patient registries provided opportunities for rapid large-scale analysis. Most recently, specialty-specific registries have enabled the biomedical workforce to focus on certain diseases, particularly neurological and neurosurgical in nature. State and nation-wide analyses of these patients have combined geographic, demographic, patient presentation, and treatment information to identify disparities in care and patient outcomes. Further optimization and expansion of discipline-specific registries can improve data collection, research, and patient care, all while facilitating national collaboration that was not previously possible.
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issn 2949-6977
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publishDate 2025-12-01
publisher Elsevier
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series Societal Impacts
spelling doaj-art-04703e1403db423fa6cf4663b8c39a682025-08-20T03:14:01ZengElsevierSocietal Impacts2949-69772025-12-01610013110.1016/j.socimp.2025.100131From data to impact: The societal contributions of neurological and neurosurgical national registriesTiffany Eatz0Chase DeLong1Ashley R. Metzler2Neil Patel3Ian A. Ramsay4Sai Sanikommu5Soumya Shrigiri6Ahmed Abdelsalam7Luis Guada8Michael A. Silva9Dileep R. Yavagal10Sebastian Koch11Robert M. Starke12Department of Neurology, The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of America; Correspondence to: 1400 NW 12th Ave, Miami, FL 33136, United States of America.Department of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurology, The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurology, The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurology, The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaDepartment of Neurosurgery, Radiology, Pharmacology, Neurosciences. The University of Miami, Miller School of Medicine, 1400 NW 12th Ave, Miami, FL 33136, United States of AmericaThe creation of the electronic medical record (EMR) was one of the greatest advancements in medical documentation. It improved the efficiency and practicality of multi-patient research, such as retrospective case series and cohort studies. While EMRs made collecting and sharing patient data feasible, the subsequent advent of patient registries provided opportunities for rapid large-scale analysis. Most recently, specialty-specific registries have enabled the biomedical workforce to focus on certain diseases, particularly neurological and neurosurgical in nature. State and nation-wide analyses of these patients have combined geographic, demographic, patient presentation, and treatment information to identify disparities in care and patient outcomes. Further optimization and expansion of discipline-specific registries can improve data collection, research, and patient care, all while facilitating national collaboration that was not previously possible.http://www.sciencedirect.com/science/article/pii/S294969772500030XNeurologyNeurosurgeryNeuroinventionPatientDataRegistry
spellingShingle Tiffany Eatz
Chase DeLong
Ashley R. Metzler
Neil Patel
Ian A. Ramsay
Sai Sanikommu
Soumya Shrigiri
Ahmed Abdelsalam
Luis Guada
Michael A. Silva
Dileep R. Yavagal
Sebastian Koch
Robert M. Starke
From data to impact: The societal contributions of neurological and neurosurgical national registries
Societal Impacts
Neurology
Neurosurgery
Neuroinvention
Patient
Data
Registry
title From data to impact: The societal contributions of neurological and neurosurgical national registries
title_full From data to impact: The societal contributions of neurological and neurosurgical national registries
title_fullStr From data to impact: The societal contributions of neurological and neurosurgical national registries
title_full_unstemmed From data to impact: The societal contributions of neurological and neurosurgical national registries
title_short From data to impact: The societal contributions of neurological and neurosurgical national registries
title_sort from data to impact the societal contributions of neurological and neurosurgical national registries
topic Neurology
Neurosurgery
Neuroinvention
Patient
Data
Registry
url http://www.sciencedirect.com/science/article/pii/S294969772500030X
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