Quality of Life Study in Chronic Diseases: More Needed Than Ever

Numerous thyroid diseases can impact patients’ lives, one of which is Graves’ ophthalmopathy (GO). Graves’ ophthalmopathy is a progressive thyroid-related disease that causes eye symptoms due to an autoimmune reaction targeting thyrotropin/thyroid stimulating hormone (TSH) receptors in the orbital s...

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Main Author: Laurentius Aswin Pramono
Format: Article
Language:English
Published: Interna Publishing 2024-10-01
Series:Acta Medica Indonesiana
Subjects:
Online Access:https://actamedindones.org/index.php/ijim/article/view/2954
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author Laurentius Aswin Pramono
author_facet Laurentius Aswin Pramono
author_sort Laurentius Aswin Pramono
collection DOAJ
description Numerous thyroid diseases can impact patients’ lives, one of which is Graves’ ophthalmopathy (GO). Graves’ ophthalmopathy is a progressive thyroid-related disease that causes eye symptoms due to an autoimmune reaction targeting thyrotropin/thyroid stimulating hormone (TSH) receptors in the orbital space. This condition can be easily recognized by the patient, including exophthalmos, pain, swelling, double vision, and impaired vision. Globally, the estimated incidence of GO is 3.3–8 per 100,000 in women and 0.9–1.6 per 100,000 in men with the peak incidence between 30-60 years old. The prevalence of GO is 9 per 100,000, with the prevalence of GO among patients with Graves’ disease reaching 30%. Anggraini and Nusanti’s study is one of only a few studies in Indonesia that aim to adapt a quality of life questionnaire into Bahasa Indonesia and find out patients’ quality of life afterward, specifically in the thyroid field. The steps for translation, validation, and adaptation of the questionnaire and thus exploring patients' quality of life can be a model for similar studies. Today, our patients not only need assessment for clinical symptoms, signs, laboratory, or radiology results but also need assessment for their well-being and unmet needs which are summarized in the quality of life questionnaires. In the end, optimal quality of care will be the ultimate goal for all chronic disease patients.
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spelling doaj-art-04278ebc31914aac99a892a5343e87302025-01-27T04:12:06ZengInterna PublishingActa Medica Indonesiana0125-93262338-27322024-10-01564709Quality of Life Study in Chronic Diseases: More Needed Than EverLaurentius Aswin Pramono0School of Medicine and Health Sciences Atma Jaya Catholic University of Indonesia - St Carolus Hospital, Jakarta, IndonesiaNumerous thyroid diseases can impact patients’ lives, one of which is Graves’ ophthalmopathy (GO). Graves’ ophthalmopathy is a progressive thyroid-related disease that causes eye symptoms due to an autoimmune reaction targeting thyrotropin/thyroid stimulating hormone (TSH) receptors in the orbital space. This condition can be easily recognized by the patient, including exophthalmos, pain, swelling, double vision, and impaired vision. Globally, the estimated incidence of GO is 3.3–8 per 100,000 in women and 0.9–1.6 per 100,000 in men with the peak incidence between 30-60 years old. The prevalence of GO is 9 per 100,000, with the prevalence of GO among patients with Graves’ disease reaching 30%. Anggraini and Nusanti’s study is one of only a few studies in Indonesia that aim to adapt a quality of life questionnaire into Bahasa Indonesia and find out patients’ quality of life afterward, specifically in the thyroid field. The steps for translation, validation, and adaptation of the questionnaire and thus exploring patients' quality of life can be a model for similar studies. Today, our patients not only need assessment for clinical symptoms, signs, laboratory, or radiology results but also need assessment for their well-being and unmet needs which are summarized in the quality of life questionnaires. In the end, optimal quality of care will be the ultimate goal for all chronic disease patients.https://actamedindones.org/index.php/ijim/article/view/2954graves ophthalmopathyquality of lifequestionnaireindonesian go-qol
spellingShingle Laurentius Aswin Pramono
Quality of Life Study in Chronic Diseases: More Needed Than Ever
Acta Medica Indonesiana
graves ophthalmopathy
quality of life
questionnaire
indonesian go-qol
title Quality of Life Study in Chronic Diseases: More Needed Than Ever
title_full Quality of Life Study in Chronic Diseases: More Needed Than Ever
title_fullStr Quality of Life Study in Chronic Diseases: More Needed Than Ever
title_full_unstemmed Quality of Life Study in Chronic Diseases: More Needed Than Ever
title_short Quality of Life Study in Chronic Diseases: More Needed Than Ever
title_sort quality of life study in chronic diseases more needed than ever
topic graves ophthalmopathy
quality of life
questionnaire
indonesian go-qol
url https://actamedindones.org/index.php/ijim/article/view/2954
work_keys_str_mv AT laurentiusaswinpramono qualityoflifestudyinchronicdiseasesmoreneededthanever