System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways
The European Haemophilia Consortium (EHC) Think Tank was established as a platform for system change to ensure the healthcare ecosystem remains effective and relevant for people with bleeding disorders and other rare diseases. Operating alongside traditional advocacy initiatives, it comprised a seri...
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| Format: | Article |
| Language: | English |
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Sciendo
2024-08-01
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| Series: | The Journal of Haemophilia Practice |
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| Online Access: | https://doi.org/10.2478/jhp-2024-0017 |
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| _version_ | 1832570282475257856 |
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| author | Gacser Zita Bourke Steven Hosszú Dalma Daniels Susan |
| author_facet | Gacser Zita Bourke Steven Hosszú Dalma Daniels Susan |
| author_sort | Gacser Zita |
| collection | DOAJ |
| description | The European Haemophilia Consortium (EHC) Think Tank was established as a platform for system change to ensure the healthcare ecosystem remains effective and relevant for people with bleeding disorders and other rare diseases. Operating alongside traditional advocacy initiatives, it comprised a series of thematic workstreams in which multiple stakeholders explored and co-designed potential solutions for specific aspects of the healthcare system. This final report from the workstreams on Access Equity and Future Care Pathways summarises recommendations for system change and the actions needed to achieve critical goals. |
| format | Article |
| id | doaj-art-02a0a45a87714923a2980312609b154f |
| institution | Kabale University |
| issn | 2055-3390 |
| language | English |
| publishDate | 2024-08-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj-art-02a0a45a87714923a2980312609b154f2025-02-02T15:48:30ZengSciendoThe Journal of Haemophilia Practice2055-33902024-08-011119910710.2478/jhp-2024-0017System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care PathwaysGacser Zita0Bourke Steven1Hosszú Dalma2Daniels Susan34European Haemophilia Consortium, Brussels, BelgiumPersonal Pulse GmbH, Basel, SwitzerlandSyreon Research Institute, Budapest, HungaryLumanity, Farnham, UKEuropean Haemophilia Consortium, Brussels, BelgiumThe European Haemophilia Consortium (EHC) Think Tank was established as a platform for system change to ensure the healthcare ecosystem remains effective and relevant for people with bleeding disorders and other rare diseases. Operating alongside traditional advocacy initiatives, it comprised a series of thematic workstreams in which multiple stakeholders explored and co-designed potential solutions for specific aspects of the healthcare system. This final report from the workstreams on Access Equity and Future Care Pathways summarises recommendations for system change and the actions needed to achieve critical goals.https://doi.org/10.2478/jhp-2024-0017access equitycare pathwaybehaviour changedigital healthhealth investment |
| spellingShingle | Gacser Zita Bourke Steven Hosszú Dalma Daniels Susan System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways The Journal of Haemophilia Practice access equity care pathway behaviour change digital health health investment |
| title | System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways |
| title_full | System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways |
| title_fullStr | System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways |
| title_full_unstemmed | System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways |
| title_short | System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways |
| title_sort | system change in practice a report from the ehc think tank workstreams on access equity and future care pathways |
| topic | access equity care pathway behaviour change digital health health investment |
| url | https://doi.org/10.2478/jhp-2024-0017 |
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