Long-term patient-reported outcomes following congenital heart surgery in adults
ObjectiveTo investigate the long-term impact of cardiac surgery on the quality of life in adults with congenital heart disease (ACHDs).MethodsPatients who had undergone cardiac surgery for congenital heart disease (CHD) at the age of 18 years or more were recruited in a single-center, cross-sectiona...
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| Format: | Article |
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Frontiers Media S.A.
2024-12-01
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| Series: | Frontiers in Cardiovascular Medicine |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fcvm.2024.1501680/full |
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| author | Thibault Schaeffer Thibault Schaeffer Pauline Bossers Doris Kienmoser Doris Kienmoser Oktay Tutarel Paul Philipp Heinisch Paul Philipp Heinisch Masamichi Ono Masamichi Ono Julie Cleuziou Julie Cleuziou Jelena Pabst von Ohain Jelena Pabst von Ohain Jürgen Hörer Jürgen Hörer |
| author_facet | Thibault Schaeffer Thibault Schaeffer Pauline Bossers Doris Kienmoser Doris Kienmoser Oktay Tutarel Paul Philipp Heinisch Paul Philipp Heinisch Masamichi Ono Masamichi Ono Julie Cleuziou Julie Cleuziou Jelena Pabst von Ohain Jelena Pabst von Ohain Jürgen Hörer Jürgen Hörer |
| author_sort | Thibault Schaeffer |
| collection | DOAJ |
| description | ObjectiveTo investigate the long-term impact of cardiac surgery on the quality of life in adults with congenital heart disease (ACHDs).MethodsPatients who had undergone cardiac surgery for congenital heart disease (CHD) at the age of 18 years or more were recruited in a single-center, cross-sectional study. The enrolled subjects completed online questionnaires to assess patient-reported outcomes: perceived health status and life satisfaction, psychological functioning, health behaviors, and illness perception. Clinical variables were correlated to the score results, and results were compared to representative samples from international and German national surveys of healthy subjects and ACHDs.ResultsWe enrolled 196 ACHDs (54% women), including 55% with more than one cardiac surgery during their lifetime. The median age at the survey was 43 years, with a median of 13 years since their last cardiac surgery. The majority of patients reported improved subjective wellbeing after cardiac operation and were in functional New York Heart Association class I or II. The severity of underlying CHD, number of previous cardiac operations, and beta-blocker medication had the most substantial negative effects on illness perception. Measured quality of life and health risk behaviors were within the range of values internationally reported for healthy and CHD subjects, respectively.ConclusionsACHD, several years after cardiac surgery, reported a subjective improvement in their wellbeing, a life satisfaction comparable to that of healthy individuals, and low health risk behaviors. Illness perception is strongly correlated with the severity of the underlying CHD. |
| format | Article |
| id | doaj-art-02235b03f2e243bdbd4cece1d1402cf4 |
| institution | OA Journals |
| issn | 2297-055X |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Cardiovascular Medicine |
| spelling | doaj-art-02235b03f2e243bdbd4cece1d1402cf42025-08-20T02:38:59ZengFrontiers Media S.A.Frontiers in Cardiovascular Medicine2297-055X2024-12-011110.3389/fcvm.2024.15016801501680Long-term patient-reported outcomes following congenital heart surgery in adultsThibault Schaeffer0Thibault Schaeffer1Pauline Bossers2Doris Kienmoser3Doris Kienmoser4Oktay Tutarel5Paul Philipp Heinisch6Paul Philipp Heinisch7Masamichi Ono8Masamichi Ono9Julie Cleuziou10Julie Cleuziou11Jelena Pabst von Ohain12Jelena Pabst von Ohain13Jürgen Hörer14Jürgen Hörer15Department of Congenital and Pediatric Cardiac Surgery, German Heart Center Munich, Technical University of Munich, Munich, GermanyDivision of Congenital and Pediatric Cardiac Surgery, University Hospital of Munich, Ludwig-Maximilians University Munich, Munich, GermanyDepartment of Congenital and Pediatric Cardiac Surgery, German Heart Center Munich, Technical University of Munich, Munich, GermanyDepartment of Congenital and Pediatric Cardiac Surgery, German Heart Center Munich, Technical University of Munich, Munich, GermanyDivision of Congenital and Pediatric Cardiac Surgery, University Hospital of Munich, Ludwig-Maximilians University Munich, Munich, GermanyInternational Center for Adults with Congenital Heart Disease, Department of Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University of Munich, Munich, GermanyDepartment of Congenital and Pediatric Cardiac Surgery, German Heart Center Munich, Technical University of Munich, Munich, GermanyDivision of Congenital and Pediatric Cardiac Surgery, University Hospital of Munich, Ludwig-Maximilians University Munich, Munich, GermanyDepartment of Congenital and Pediatric Cardiac Surgery, German Heart Center Munich, Technical University of Munich, Munich, GermanyDivision of Congenital and Pediatric Cardiac Surgery, University Hospital of Munich, Ludwig-Maximilians University Munich, Munich, GermanyDepartment of Congenital and Pediatric Cardiac Surgery, German Heart Center Munich, Technical University of Munich, Munich, GermanyDivision of Congenital and Pediatric Cardiac Surgery, University Hospital of Munich, Ludwig-Maximilians University Munich, Munich, GermanyDepartment of Congenital and Pediatric Cardiac Surgery, Klinikum Stuttgart, Stuttgart, GermanyTechnical University of Munich, Munich, GermanyDepartment of Congenital and Pediatric Cardiac Surgery, German Heart Center Munich, Technical University of Munich, Munich, GermanyDivision of Congenital and Pediatric Cardiac Surgery, University Hospital of Munich, Ludwig-Maximilians University Munich, Munich, GermanyObjectiveTo investigate the long-term impact of cardiac surgery on the quality of life in adults with congenital heart disease (ACHDs).MethodsPatients who had undergone cardiac surgery for congenital heart disease (CHD) at the age of 18 years or more were recruited in a single-center, cross-sectional study. The enrolled subjects completed online questionnaires to assess patient-reported outcomes: perceived health status and life satisfaction, psychological functioning, health behaviors, and illness perception. Clinical variables were correlated to the score results, and results were compared to representative samples from international and German national surveys of healthy subjects and ACHDs.ResultsWe enrolled 196 ACHDs (54% women), including 55% with more than one cardiac surgery during their lifetime. The median age at the survey was 43 years, with a median of 13 years since their last cardiac surgery. The majority of patients reported improved subjective wellbeing after cardiac operation and were in functional New York Heart Association class I or II. The severity of underlying CHD, number of previous cardiac operations, and beta-blocker medication had the most substantial negative effects on illness perception. Measured quality of life and health risk behaviors were within the range of values internationally reported for healthy and CHD subjects, respectively.ConclusionsACHD, several years after cardiac surgery, reported a subjective improvement in their wellbeing, a life satisfaction comparable to that of healthy individuals, and low health risk behaviors. Illness perception is strongly correlated with the severity of the underlying CHD.https://www.frontiersin.org/articles/10.3389/fcvm.2024.1501680/fulladult with congenital heart diseasecardiac surgerypatient-reported outcomesquality of lifeillness perception |
| spellingShingle | Thibault Schaeffer Thibault Schaeffer Pauline Bossers Doris Kienmoser Doris Kienmoser Oktay Tutarel Paul Philipp Heinisch Paul Philipp Heinisch Masamichi Ono Masamichi Ono Julie Cleuziou Julie Cleuziou Jelena Pabst von Ohain Jelena Pabst von Ohain Jürgen Hörer Jürgen Hörer Long-term patient-reported outcomes following congenital heart surgery in adults Frontiers in Cardiovascular Medicine adult with congenital heart disease cardiac surgery patient-reported outcomes quality of life illness perception |
| title | Long-term patient-reported outcomes following congenital heart surgery in adults |
| title_full | Long-term patient-reported outcomes following congenital heart surgery in adults |
| title_fullStr | Long-term patient-reported outcomes following congenital heart surgery in adults |
| title_full_unstemmed | Long-term patient-reported outcomes following congenital heart surgery in adults |
| title_short | Long-term patient-reported outcomes following congenital heart surgery in adults |
| title_sort | long term patient reported outcomes following congenital heart surgery in adults |
| topic | adult with congenital heart disease cardiac surgery patient-reported outcomes quality of life illness perception |
| url | https://www.frontiersin.org/articles/10.3389/fcvm.2024.1501680/full |
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