Factors associated with delaying and forgoing care due to cost among long-term, Appalachian cancer survivors in rural North Carolina

Background Little research exists on delayed and forgone health and mental health care due to cost among rural cancer survivors.Methods We surveyed survivors in 7 primarily rural, Appalachian counties February to May 2020. Univariable analyses examined the distribution and prevalence of delayed/forg...

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Main Authors: Derek S. Falk, Janet A. Tooze, Karen M. Winkfield, Ronny A. Bell, Sarah A. Birken, Bonny B. Morris, Carla Strom, Emily Copus, Kelsey Shore, Kathryn E. Weaver
Format: Article
Language:English
Published: Taylor & Francis Group 2023-01-01
Series:Cancer Survivorship Research & Care
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Online Access:https://www.tandfonline.com/doi/10.1080/28352610.2023.2270401
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author Derek S. Falk
Janet A. Tooze
Karen M. Winkfield
Ronny A. Bell
Sarah A. Birken
Bonny B. Morris
Carla Strom
Emily Copus
Kelsey Shore
Kathryn E. Weaver
author_facet Derek S. Falk
Janet A. Tooze
Karen M. Winkfield
Ronny A. Bell
Sarah A. Birken
Bonny B. Morris
Carla Strom
Emily Copus
Kelsey Shore
Kathryn E. Weaver
author_sort Derek S. Falk
collection DOAJ
description Background Little research exists on delayed and forgone health and mental health care due to cost among rural cancer survivors.Methods We surveyed survivors in 7 primarily rural, Appalachian counties February to May 2020. Univariable analyses examined the distribution and prevalence of delayed/forgone care due to cost in the past year by independent variables. Chi-square or Fisher’s tests examined bivariable differences. Logistic regressions assessed the odds of delayed/forgone care due to cost.Results Respondents (n = 428), aged 68.6 years on average (SD: 12.0), were 96.3% non-Hispanic white and 49.8% female; 25.0% reported delayed/forgone care due to cost. The response rate was 18.5%. The proportion of delayed/forgone care for those aged 18–64 years was 46.7% and 15.0% for those aged 65 + years (P < 0.0001). Females aged 65 + years (OR: 2.00; CI: 1.02-3.93) had double the odds of delayed/forgone care due to cost compared to males aged 65 + years.Conclusion About one in four rural cancer survivors reported delayed/forgone care due to cost, with rates approaching 50% in survivors aged <65 years.Impact Clinical implications indicate the need to: 1) ask about the impact of care costs, and 2) provide supportive services to mitigate effects of treatment costs, particularly for younger and female survivors.
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spelling doaj-art-baa074655f7443d1a669a4b7a4a398342024-12-02T05:20:10ZengTaylor & Francis GroupCancer Survivorship Research & Care2835-26102023-01-011110.1080/28352610.2023.2270401Factors associated with delaying and forgoing care due to cost among long-term, Appalachian cancer survivors in rural North CarolinaDerek S. Falk0Janet A. Tooze1Karen M. Winkfield2Ronny A. Bell3Sarah A. Birken4Bonny B. Morris5Carla Strom6Emily Copus7Kelsey Shore8Kathryn E. Weaver9Department of Social Sciences &amp; Health Policy, Wake Forest University School of Medicine, Medical Center Boulevard, Winston-Salem, North Carolina, USA (Sponsor)Department of Biostatistics and Data Science, Wake Forest University School of Medicine, Medical Center Boulevard, Winston-Salem, North Carolina, USAMeharry-Vanderbilt Alliance, Nashville, TN, USAPharmaceutical Outcomes and Policy, University of North Carolina Eshelman School of Pharmacy, Chapel Hill, NC, USAAtrium Health Wake Forest Baptist Comprehensive Cancer Center, Medical Center Boulevard, Winston-Salem, North Carolina, USADepartment of Social Sciences &amp; Health Policy, Wake Forest University School of Medicine, Medical Center Boulevard, Winston-Salem, North Carolina, USA (Sponsor)Atrium Health Wake Forest Baptist Comprehensive Cancer Center, Medical Center Boulevard, Winston-Salem, North Carolina, USAAtrium Health Wake Forest Baptist Comprehensive Cancer Center, Medical Center Boulevard, Winston-Salem, North Carolina, USAAtrium Health Wake Forest Baptist Comprehensive Cancer Center, Medical Center Boulevard, Winston-Salem, North Carolina, USADepartment of Social Sciences &amp; Health Policy, Wake Forest University School of Medicine, Medical Center Boulevard, Winston-Salem, North Carolina, USA (Sponsor)Background Little research exists on delayed and forgone health and mental health care due to cost among rural cancer survivors.Methods We surveyed survivors in 7 primarily rural, Appalachian counties February to May 2020. Univariable analyses examined the distribution and prevalence of delayed/forgone care due to cost in the past year by independent variables. Chi-square or Fisher’s tests examined bivariable differences. Logistic regressions assessed the odds of delayed/forgone care due to cost.Results Respondents (n = 428), aged 68.6 years on average (SD: 12.0), were 96.3% non-Hispanic white and 49.8% female; 25.0% reported delayed/forgone care due to cost. The response rate was 18.5%. The proportion of delayed/forgone care for those aged 18–64 years was 46.7% and 15.0% for those aged 65 + years (P < 0.0001). Females aged 65 + years (OR: 2.00; CI: 1.02-3.93) had double the odds of delayed/forgone care due to cost compared to males aged 65 + years.Conclusion About one in four rural cancer survivors reported delayed/forgone care due to cost, with rates approaching 50% in survivors aged <65 years.Impact Clinical implications indicate the need to: 1) ask about the impact of care costs, and 2) provide supportive services to mitigate effects of treatment costs, particularly for younger and female survivors.https://www.tandfonline.com/doi/10.1080/28352610.2023.2270401Financial hardshipcancer survivorshipruralcost of careAppalachian region
spellingShingle Derek S. Falk
Janet A. Tooze
Karen M. Winkfield
Ronny A. Bell
Sarah A. Birken
Bonny B. Morris
Carla Strom
Emily Copus
Kelsey Shore
Kathryn E. Weaver
Factors associated with delaying and forgoing care due to cost among long-term, Appalachian cancer survivors in rural North Carolina
Cancer Survivorship Research & Care
Financial hardship
cancer survivorship
rural
cost of care
Appalachian region
title Factors associated with delaying and forgoing care due to cost among long-term, Appalachian cancer survivors in rural North Carolina
title_full Factors associated with delaying and forgoing care due to cost among long-term, Appalachian cancer survivors in rural North Carolina
title_fullStr Factors associated with delaying and forgoing care due to cost among long-term, Appalachian cancer survivors in rural North Carolina
title_full_unstemmed Factors associated with delaying and forgoing care due to cost among long-term, Appalachian cancer survivors in rural North Carolina
title_short Factors associated with delaying and forgoing care due to cost among long-term, Appalachian cancer survivors in rural North Carolina
title_sort factors associated with delaying and forgoing care due to cost among long term appalachian cancer survivors in rural north carolina
topic Financial hardship
cancer survivorship
rural
cost of care
Appalachian region
url https://www.tandfonline.com/doi/10.1080/28352610.2023.2270401
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