“You get left behind and lost in a complex world of rare care”: equity in access to rare disease care—learnings from the Australian Rare Disease Awareness, Education, Support, and Training (RArEST) project - Elizabeth Emma Palmer; Krista Recsei; Lauren McKnight; Natalie Roberts; Adam Jaffe; Gareth Baynam; Yvonne Zurynski; Michelle Farrar; Louise Healy; Nicole Millis; Yvonne Zurynski (EBioMedicine)