“Breaking barriers: empowering African youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis”
IntroductionPatient education is crucial in managing chronic diseases like Juvenile Idiopathic Arthritis (JIA). Traditional methods such as videos and brochures often fail to maintain long-term knowledge retention. Therapeutic Patient Education (TPE) offers a more effective, patient-centered approac...
Saved in:
| Main Authors: | , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Frontiers Media S.A.
2024-12-01
|
| Series: | Frontiers in Pediatrics |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fped.2024.1479857/full |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1846143071099551744 |
|---|---|
| author | Wafa Hamdi Angela Migowa Hanene Lassoued Ferjani Alia Fazaa Ayodele Faleye Saoussen Miladi Kaouther Maatallah Kawther Ben Abdelghani |
| author_facet | Wafa Hamdi Angela Migowa Hanene Lassoued Ferjani Alia Fazaa Ayodele Faleye Saoussen Miladi Kaouther Maatallah Kawther Ben Abdelghani |
| author_sort | Wafa Hamdi |
| collection | DOAJ |
| description | IntroductionPatient education is crucial in managing chronic diseases like Juvenile Idiopathic Arthritis (JIA). Traditional methods such as videos and brochures often fail to maintain long-term knowledge retention. Therapeutic Patient Education (TPE) offers a more effective, patient-centered approach.ObjectivePAFLAR aimed to implement a TPE program with a “train the trainers” masterclass to ensure effective delivery and improve outcomes for children with JIA.MethodsPAFLAR's TPE program was designed through a focus group, involving a literature review and strategic planning for the implementation step. The program includes specialized training for healthcare professionals enhancing their abilities to deliver TPE workshops. Participants were selected based on volunteerism and commitment to the project. Evaluations were conducted through feedback assessment of both patients and participants.ResultsPAFLAR launched a TPE program in 2023, aimed at training healthcare providers to implement TPE effectively. This initiative included both in-person and virtual masterclasses, resulting in five workshops conducted in Kenya, Tunisia, and Nigeria. These workshops covered various aspects of JIA management, such as patient and family education, self-esteem, physical activity, treatment adherence, and pain management. Early results showed significant improvements in patients’ and parents’ understanding and management of JIA, with positive feedback indicating a need for further sessions.ConclusionPAFLAR has taken the initial step in implementing a TPE program for JIA across three countries, representing different regions of Africa. The TPE program offers a promising alternative to traditional patient education methods, significantly improving patient care, empowering healthcare providers, and advancing healthcare systems. |
| format | Article |
| id | doaj-art-64c4e91fe61148f5bbbe22ed9d024663 |
| institution | Kabale University |
| issn | 2296-2360 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Pediatrics |
| spelling | doaj-art-64c4e91fe61148f5bbbe22ed9d0246632024-12-03T04:22:12ZengFrontiers Media S.A.Frontiers in Pediatrics2296-23602024-12-011210.3389/fped.2024.14798571479857“Breaking barriers: empowering African youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis”Wafa Hamdi0Angela Migowa1Hanene Lassoued Ferjani2Alia Fazaa3Ayodele Faleye4Saoussen Miladi5Kaouther Maatallah6Kawther Ben Abdelghani7Department of Rheumatology, Kassab Institute, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, TunisiaDepartment of Paediatrics and Child Health, Aga Khan University Medical College East Africa, Nairobi, KenyaDepartment of Rheumatology, Kassab Institute, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, TunisiaDepartment of Rheumatology, Mongi Slim Hospital, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, TunisiaPaediatric Rheumatology Unit, Department of Paediatrics, Lagos State University Teaching Hospital, Ikeja, Lagos, NigeriaDepartment of Rheumatology, Mongi Slim Hospital, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, TunisiaDepartment of Rheumatology, Kassab Institute, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, TunisiaDepartment of Rheumatology, Mongi Slim Hospital, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, TunisiaIntroductionPatient education is crucial in managing chronic diseases like Juvenile Idiopathic Arthritis (JIA). Traditional methods such as videos and brochures often fail to maintain long-term knowledge retention. Therapeutic Patient Education (TPE) offers a more effective, patient-centered approach.ObjectivePAFLAR aimed to implement a TPE program with a “train the trainers” masterclass to ensure effective delivery and improve outcomes for children with JIA.MethodsPAFLAR's TPE program was designed through a focus group, involving a literature review and strategic planning for the implementation step. The program includes specialized training for healthcare professionals enhancing their abilities to deliver TPE workshops. Participants were selected based on volunteerism and commitment to the project. Evaluations were conducted through feedback assessment of both patients and participants.ResultsPAFLAR launched a TPE program in 2023, aimed at training healthcare providers to implement TPE effectively. This initiative included both in-person and virtual masterclasses, resulting in five workshops conducted in Kenya, Tunisia, and Nigeria. These workshops covered various aspects of JIA management, such as patient and family education, self-esteem, physical activity, treatment adherence, and pain management. Early results showed significant improvements in patients’ and parents’ understanding and management of JIA, with positive feedback indicating a need for further sessions.ConclusionPAFLAR has taken the initial step in implementing a TPE program for JIA across three countries, representing different regions of Africa. The TPE program offers a promising alternative to traditional patient education methods, significantly improving patient care, empowering healthcare providers, and advancing healthcare systems.https://www.frontiersin.org/articles/10.3389/fped.2024.1479857/fulljuvenile idiopathic arthritispatient centered caretherapeutic patient educationdisease self-managementtrain the trainers |
| spellingShingle | Wafa Hamdi Angela Migowa Hanene Lassoued Ferjani Alia Fazaa Ayodele Faleye Saoussen Miladi Kaouther Maatallah Kawther Ben Abdelghani “Breaking barriers: empowering African youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis” Frontiers in Pediatrics juvenile idiopathic arthritis patient centered care therapeutic patient education disease self-management train the trainers |
| title | “Breaking barriers: empowering African youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis” |
| title_full | “Breaking barriers: empowering African youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis” |
| title_fullStr | “Breaking barriers: empowering African youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis” |
| title_full_unstemmed | “Breaking barriers: empowering African youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis” |
| title_short | “Breaking barriers: empowering African youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis” |
| title_sort | breaking barriers empowering african youth through implementation of a therapeutic patient education program for juvenile idiopathic arthritis |
| topic | juvenile idiopathic arthritis patient centered care therapeutic patient education disease self-management train the trainers |
| url | https://www.frontiersin.org/articles/10.3389/fped.2024.1479857/full |
| work_keys_str_mv | AT wafahamdi breakingbarriersempoweringafricanyouththroughimplementationofatherapeuticpatienteducationprogramforjuvenileidiopathicarthritis AT angelamigowa breakingbarriersempoweringafricanyouththroughimplementationofatherapeuticpatienteducationprogramforjuvenileidiopathicarthritis AT hanenelassouedferjani breakingbarriersempoweringafricanyouththroughimplementationofatherapeuticpatienteducationprogramforjuvenileidiopathicarthritis AT aliafazaa breakingbarriersempoweringafricanyouththroughimplementationofatherapeuticpatienteducationprogramforjuvenileidiopathicarthritis AT ayodelefaleye breakingbarriersempoweringafricanyouththroughimplementationofatherapeuticpatienteducationprogramforjuvenileidiopathicarthritis AT saoussenmiladi breakingbarriersempoweringafricanyouththroughimplementationofatherapeuticpatienteducationprogramforjuvenileidiopathicarthritis AT kaouthermaatallah breakingbarriersempoweringafricanyouththroughimplementationofatherapeuticpatienteducationprogramforjuvenileidiopathicarthritis AT kawtherbenabdelghani breakingbarriersempoweringafricanyouththroughimplementationofatherapeuticpatienteducationprogramforjuvenileidiopathicarthritis |