Caregivers’ Perceptions of Clinical Symptoms, Disease Management, and Quality of Life Impact in Cases of Cyclin-Dependent Kinase-Like 5 Deficiency Disorder: Cross-Sectional Online Survey - Sam Amin; Carol-Anne Partridge; Helen Leonard; Jenny Downs; Helen Allvin; Valentine Ficara; Emilie Pain; Minna A Korolainen (JMIR Formative Research)